About the group

The group meets 5 times a year. The group would like to invite new members to visit and join the group. The group would particularly like to welcome guest speakers who have attended Dystonia UK conferences to address the group and discuss types of dystonia specific to our members varying conditions.


Future meeting dates

All group meetings are postponed until further notice due to COVID-19, however we would like to invite you to take this opportunity to join our virtual groups on Facebook and to reach out to people near you that you may not have met through your normal group meetings. There are individual pages for each UK region and you can find the groups here.


Group contact

Group Contact Name: Derek Benham
Group Contact Number: 0845 899 7134
Group Contact Email: [email protected]

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only.