Dystonia UK is governed by a board of trustees who provide strategic direction and ensure strong governance.
Trustees are elected by our members for three-year terms and play a vital role in shaping our future. Each year, the board appoints a Chair, Vice Chair and Treasurer to lead governance, operational and financial decision-making.
The board delegates work to committees and the Senior Management team, who implement decisions and report back through agreed monitoring processes, ensuring accountability, effectiveness, and alignment with our mission and values.
Our policies guide our work, ensuring we operate responsibly, transparently and with the highest standards of accountability and care.
You can download the most recent Annual Report & Accounts that we submit to the Charity Commission and Companies House as PDFs below.
Why should you join Team Dystonia UK as a member? You should join us if, like us, you think dystonia matters. Read more
The Dystonia UK team - from staff to trustees to patrons and ambassadors to medical advisors! Read more
Dystonia UK is the only UK national charity dedicated to helping people living with dystonia. We were established in 1983 as The Dystonia Society, by a small group of people living with dystonia and in 2019 we rebranded to become Dystonia UK to better reflect our growing community. Read more