Living with dystonia

Living with dystonia affects people differently. How it affects you will depend on the treatments used to manage it and the form or type of dystonia you have.

For example, some types make eating or talking more difficult while other types make walking or sleeping more difficult. It can sometimes impact school or work. You may experience pain or be more tired than normal.

“Focus on the things you can do and enjoy them.” - Margie

You may need to find different ways to complete everyday tasks but lots of people can continue to do the things they did before their diagnosis. Many people find being diagnosed with dystonia gives them access to treatment options which can help with symptoms.