We exist to give hope and support to those living with dystonia. Creating UK and worldwide awareness.

Dystonia Around The World

Join us travelling 25,000 virtual miles around the world, whilst raising £25,000, starting from our head office in London and being brought back home by our amazing London Marathon Runners.

Published:

Author: Bernie McMahon

Picnic & Play

We are inviting you to fundraise for Dystonia UK, by joining us for 'Picnic & Play'!

Published:

Author: Bernie McMahon

Dystonia Matters Webinars

Reach Out, Reach All Webinars featuring experts in neurological movement disorders.

Published:

Author: Bernie McMahon

Our Impact


707,000

people reached in the last 3 months

£27,000

on average spent on research a year

550

enquirers supported a year

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Latest news

  • How can you shape the future of neurological care?

    06/04/2021 | People with dystonia have shared concerns about receiving support, healthcare and mental health services during the pandemic. A new app is gathering data to shape the future of neurological care. Read more

  • Digital Health and Care Conference

    05/05/2021 | Our Director of Operations and Development attended the King's Fund 'Digital Health and Care conference: Learning from COVID-19'. Read more

  • Digital access to care

    28/05/2021 | Read more about the work Dystonia UK has recently completed with National Voices including the launch of a report on inclusive digital access to care. Read more

Latest events

  • Dystonia Around The World

    Join us travelling 25,000 virtual miles around the world, whilst raising £25,000, starting from our head office in London and being brought back home by our amazing London Marathon Runners. Read more

  • Virtual 2021 Virgin Money London Marathon

    Event Type: Marathon. Date: Sunday 3rd October 2021. Location: Virtual so wherever you are. Registration Fee: £15. Sponsorship Pledge £250. Read more

  • Great North Run

    Event Type: Half-Marathon. Date: TBD 2022 Location: Newcastle. Registration Fee: Free! Fundraising Target: £500. Read more