The Dystonia Society

Conference for Parents and Carers

Speakers announced for our conference for parents and carers of children and young people with dystonia to be held on Saturday 22nd September 2018 at Resource for London, 356 Holloway Road, London, N7 6PA. Read more
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Helpline

Sometimes it is helpful to talk to someone who understands: not only about the condition, but how you may be feeling. Our telephone Helpline is available from Tuesday to Friday from 10am to 4pm to both members and non-members and to healthcare professionals. 020 7793 3650 Read more

Providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia

Find out more

What is dystonia?

Dystonia is the term used to describe uncontrollable and sometimes painful muscle spasms caused by incorrect signals from the brain. It is estimated to affect at least 70,000 people in the UK. There are a large number of different types of dystonia which affect people in widely differing ways. Unfortunately there is not yet a cure.

What treatment is available?

Various treatments are available for dystonia. These will be determined by the type and severity of the particular condition.

How do I live with dystonia?

Most people do manage to develop effective strategies for coping with the challenges that their condition brings. Successful treatments to lessen their symptoms, effective pain control and the acquisition of sensory ‘tricks’ all help to make social situations easier.

Dystonia News

Support group meetings in September

Join one of our support groups at a meeting this September. Read more
Survey of Young Europeans with Neurological Conditions

EFNA has recently published a report of findings from their Survey of Young Europeans with Neurological Conditions. Read more
David Marsden Award 2019

The David Marsden Award 2019 is offering 10,000€ to stimulate research on dystonia. Read more

Fundraising Events

Hampton Court Palace Half Marathon 2019

Runners Wanted for the 5th Hampton Court Palace Half Marathon 2019. Set at the historic venue, you not only run a pictureesqe course, but also get your own unique, Tudor themed medal. Read more
Start: 17^th March, 2019 at 9:00am

End: 17^th March, 2019 at 1:00pm

Published: 16^th July, 2018

Updated: 19^th July, 2018

Author: flavie belanco

Location: Hampton Court Palace , Hampton Court Way, East Molesey, Surrey, KT8 9AU
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5k Big Fun Run - Newcastle and Crystal Palace

Take part in two exciting 5k Fun Runs in October. Proceeds go towards our Conference for Parents and Carers of Children with Dystonia on 22nd September. More locations available in the UK. Read more
Start: 21^st October, 2018 at 11:00am

End: 28^th October, 2018 at 11:00am

Published: 17^th July, 2018

Updated: 13^th September, 2018

Author: flavie belanco

Location: England, England
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- Fundraising events
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Dystonia Society's Tea Party

Throughout October we're asking you to have a cuppa for the Dystonia Society by hosting a tea party and raising money for the charity. Read more
Start: 1^st October, 2018 at 9:00am

End: 31^st October, 2018 at 11:00pm

Published: 12^th September, 2018

Updated: 13^th September, 2018

Author: Bernie McMahon

Location: UK-wide
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- Fundraising events
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