We exist to give hope and support to those living with dystonia. Creating UK and worldwide awareness.

My Neuro Survey

For anyone with a neurological condition in England, Scotland, Wales or Northern Ireland. Takes 20 minutes.


Author: Bernie McMahon


Please donate just £1 to help support the dystonia community today. We are aiming to raise £100,000, one pound for every person in the UK thought to be affected by dystonia. #JustOnePound


Author: Bernie McMahon

Dystonia Matters Webinars

Reach Out, Reach All Webinars featuring experts in neurological movement disorders.


Author: Bernie McMahon

Our Impact


people reached in the last 3 months


on average spent on research a year


enquirers supported a year

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Latest news

  • Dystonia Animated episode 2 out now!

    15/10/2021 | We are so delighted to bring you 'Dystonia Animated' Episode 2 - 'Charlie at the children's hospital'! Read more

  • My Neuro Survey launched!

    26/10/2021 | The Neurological Alliance's My Neuro Survey has now launched. Read on to find out why this survey is so key in improving neurological services. Read more

  • One4all

    01/11/2021 | Dystonia UK has launched its latest campaign today! The campaign is simple - we're asking our community to donate #JustOnePound to support our work and help us raise £100,000, one pound for every person in the UK thought to be affected by dystonia. Read more

Latest events

  • Virtual 2021 Virgin Money London Marathon

    Event Type: Marathon. Date: Sunday 3rd October 2021. Location: Virtual so wherever you are. Registration Fee: £15. Sponsorship Pledge £250. Read more

  • Dystonia Around The World

    Join us in the summer of 2022 travelling 25,000 virtual miles around the world, whilst raising £25,000, starting from our head office in London and being brought back home again. Read more

  • Great North Run

    Event Type: Half-Marathon. Date: TBD 2022 Location: Newcastle. Registration Fee: Free! Fundraising Target: £500. Read more