We exist to give hope and support to those living with dystonia. Creating UK and worldwide awareness.

Dystonia Matters Webinars

Reach Out, Reach All Webinars featuring experts in neurological movement disorders.


Author: Bernie McMahon

Coronavirus and dystonia

11/02/2021 | We’re here for you. Here’s the latest guidance on coronavirus and dystonia, and where to get support.


Author: Bernie McMahon

Your stories

You are not alone and we wanted to share with you some stories of members and supporters who are on this journey with you.


Author: Bernie McMahon

Our Impact


people reached in the last 3 months


on average spent on research a year


enquirers supported a year

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Latest news

Latest events

  • Dystonia around the world

    Join us in virtually travelling 25,000 miles from Dystonia UK’s HQ around the world and back, and raising £25,000 to help raise global awareness of the condition affecting 100,000 people in the UK alone each year. Read more

  • Virtual 2021 Virgin Money London Marathon

    Event Type: Marathon. Date: Sunday 3rd October 2021. Location: Virtual so wherever you are. Registration Fee: £15. Sponsorship Pledge £250. Read more