We exist to give hope and support to those living with dystonia. Creating UK and worldwide awareness.

Reach Out, Reach All

The Reach Out, Reach All campaign aims to bring the dystonia community together, through film, animation, podcasts and webinars.


Author: Bernie McMahon

Coronavirus and dystonia

04/01/2021 | We’re here for you. Here’s the latest guidance on coronavirus and dystonia, and where to get support.


Author: Bernie McMahon

Your stories

You are not alone and we wanted to share with you some stories of members and supporters who are on this journey with you.


Author: Bernie McMahon

Our Impact


people reached in the last 3 months


on average spent on research a year


enquirers supported a year

Make a donation

Please select a donation amount (required)
Set up a regular payment Donate

Latest news

Latest events

  • Dystonia around the world

    Join us in virtually travelling 25,000 miles from Dystonia UK’s HQ around the world and back, and raising £25,000 to help raise global awareness of the condition affecting 100,000 people in the UK alone each year. Read more

  • Fundraise your way

    Can't find what you are looking for? Do your own thing. Read more