We exist to give hope and support to those living with dystonia. Creating UK and worldwide awareness.

Picnic & Play

We are inviting you to fundraise for Dystonia UK, by joining us for 'Picnic & Play'!


Author: Bernie McMahon

Coronavirus and dystonia

11/02/2021 | We’re here for you. Here’s the latest guidance on coronavirus and dystonia, and where to get support.


Author: Bernie McMahon

Dystonia Matters Webinars

Reach Out, Reach All Webinars featuring experts in neurological movement disorders.


Author: Bernie McMahon

Our Impact


people reached in the last 3 months


on average spent on research a year


enquirers supported a year

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Latest news

  • How can you shape the future of neurological care?

    06/04/2021 | People with dystonia have shared concerns about receiving support, healthcare and mental health services during the pandemic. A new app is gathering data to shape the future of neurological care. Read more

  • Digital Health and Care Conference

    05/05/2021 | Our Director of Operations and Development attended the King's Fund 'Digital Health and Care conference: Learning from COVID-19'. Read more

  • Digital access to care

    28/05/2021 | Read more about the work Dystonia UK has recently completed with National Voices including the launch of a report on inclusive digital access to care. Read more

Latest events

  • Dystonia around the world

    Join us in virtually travelling 25,000 miles from Dystonia UK’s HQ around the world and back, and raising £25,000 to help raise global awareness of the condition affecting 100,000 people in the UK alone each year. Read more

  • Great North Run

    Event Type: Half-Marathon. Date: Sunday 12th September 2021. Location: Newcastle. Registration Fee: Free! Fundraising Target: £500. Read more

  • Virtual 2021 Virgin Money London Marathon

    Event Type: Marathon. Date: Sunday 3rd October 2021. Location: Virtual so wherever you are. Registration Fee: £15. Sponsorship Pledge £250. Read more