The Dystonia Society

Coronavirus and Dystonia

We’re here for you. Here’s the latest guidance on coronavirus and dystonia, and where to get support. View our guidance Read more
Reach Out, Reach All

Reach Out, Reach All is a new Dystonia UK project aiming to produce a series of short films about the milestone moments in our lives that for someone with dystonia present unique challenges. You can help us achieve our goal - support our crowdfunder today! Read more
Symptoms of dystonia

Dystonia is a neurological movement disorder. Faulty signals from the brain cause muscles to spasm and pull on the body incorrectly. This forces the body into twisting, repetitive movements or abnormal postures. Read more

Providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia

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What is dystonia?

Dystonia is the term used to describe uncontrollable and sometimes painful muscle spasms caused by incorrect signals from the brain. It is estimated to affect at least 70,000 people in the UK. There are a large number of different types of dystonia which affect people in widely differing ways. Unfortunately there is not yet a cure.

What treatment is available?

Various treatments are available for dystonia. These will be determined by the type and severity of the particular condition.

How do I live with dystonia?

Most people do manage to develop effective strategies for coping with the challenges that their condition brings. Successful treatments to lessen their symptoms, effective pain control and the acquisition of sensory ‘tricks’ all help to make social situations easier.

Dystonia News

Information about the reopening of botulinum toxin clinics for patients with dystonia

The NHS is now resuming some outpatient services which have been closed due to the coronavirus (covid-19) pandemic on a phased basis. This will include the reopening of some botulinum toxin clinics for dystonia patients in some areas. Dystonia UK have provided some useful information on what you might be able to expect as appointments resume. Read more
Taking Control of Your Dystonia - A physiotherapy focus

Dystonia UK is thrilled to present the second webinar in our 'Reach Out, Reach All' series. Read more
Dystonia during the pandemic; How to cope with no botulinum toxin injections available & isolation during the coronavirus outbreak.

Dystonia UK present a webinar with Dr. Marie-Helene Marion on topics surrounding dystonia and botulinum toxin treatment during the coronavirus outbreak. The webinar was hosted by Dystonia UK on Thursday 2nd April 2020. Read more

Fundraising Events

Prudential RideLondon 2019

CYCLISTS WANTED! Prudential RideLondon, 3rd August, 2019 - the largest annual fundraising cycle event on the planet! Read more
Start: 3^rd August, 2019 at 6:00am

End: 4^th August, 2019 at 12:00am

Published: 21^st March, 2017

Updated: 14^th November, 2018

Author:

Location: London, London
Related topics:
- Cycling events
- Fundraising events
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