Providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia

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What is dystonia?

Dystonia is the term used to describe uncontrollable and sometimes painful muscle spasms caused by incorrect signals from the brain. It is estimated to affect at least 70,000 people in the UK. There are a large number of different types of dystonia which affect people in widely differing ways. Unfortunately there is not yet a cure.


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What treatment is available?

Various treatments are available for dystonia. These will be determined by the type and severity of the particular condition.


Author: Bernie McMahon

How do I live with dystonia?

Most people do manage to develop effective strategies for coping with the challenges that their condition brings. Successful treatments to lessen their symptoms, effective pain control and the acquisition of sensory ‘tricks’ all help to make social situations easier.


Author: Bernie McMahon

Dystonia News

  • PressOp™

    A team of researchers at the Oxford Eye Hospital, based at John Radcliffe Hospital, have created a device designed to help individuals with Blepharospasm. Read more

  • Understanding symptoms associated with eyelid spasms

    Dystonia Society UK and Fight for Sight are funding researchers from Cardiff University to identify the symptoms associated with blepharospasm. Read more

  • Neurological patient experience survey

    Make your voice heard on dystonia care. Complete the Neurological Alliance survey to tell us about your experiences. Read more

Fundraising Events

  • Prudential RideLondon 2019

    CYCLISTS WANTED! Prudential RideLondon, 3rd August, 2019 - the largest annual fundraising cycle event on the planet! Read more

  • Royal Parks Half Marathon 2019

    Created in 2008, this is a spectacular Half Marathon in central London – the first and only one of its kind. The stunning 13.1 mile route takes in the capital’s world-famous landmarks on closed roads, and four of London’s eight Royal Parks – Hyde Park, The Green Park, St James’s Park and Kensington Gardens. Read more

  • London Marathon 2019

    Were you successful in securing a place for London Marathon 2019? Or perhaps you know someone that was. The Dystonia Society is looking for runners to join Team Dystonia for the most famous running event in the world. Read more