The only national charity providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia
Dystonia is a neurological movement disorder. Faulty signals from the brain cause muscles to spasm and pull on the body incorrectly. This forces the body into twisting, repetitive movements or abnormal postures. Read more
In October 2016 Jo Brown celebrated the 10 year anniversary of her Deep Brain Stimulation (DBS) operation. Here Jo tells us her story. Read more
Providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia
Dystonia is the term used to describe uncontrollable and sometimes painful muscle spasms caused by incorrect signals from the brain. It is estimated to affect at least 70,000 people in the UK. There are a large number of different types of dystonia which affect people in widely differing ways.
Various treatments are available for dystonia. These will be determined by the type and severity of the particular condition.
Most people do manage to develop effective strategies for coping with the challenges that their condition brings. Successful treatments to lessen their symptoms, effective pain control and the acquisition of sensory ‘tricks’ all help to make social situations easier.
Dystonia Awareness Week will be 5th - 13th May 2018! Read more
Please note the days the Helpline are open have changed. Read more
On Friday 27th April there will be a concert at Black Park Chapel raising funds for dystonia. Read more
22 April 2018: The London Marathon has an absolutely amazing atmosphere - join us to support our runners. Read more
We're really excited to announce our first places for this year's Prudential RideLondon - the largest annual fundraising cycle event on the planet, which since 2013 has raised over £17 million for good causes. Read more
An event that inspires you to take on a challenge that is right for you with route distances of 10km, 25km, 35km, 45km and the BIG 60km! Read more