The Dystonia Society

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Symptoms of dystonia

Dystonia is a neurological movement disorder. Faulty signals from the brain cause muscles to spasm and pull on the body incorrectly. This forces the body into twisting, repetitive movements or abnormal postures. Read more
Jo's DBS Journey

In October 2016 Jo Brown celebrated the 10 year anniversary of her Deep Brain Stimulation (DBS) operation. Here Jo tells us her story. Read more

Providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia

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What is dystonia?

Dystonia is the term used to describe uncontrollable and sometimes painful muscle spasms caused by incorrect signals from the brain. It is estimated to affect at least 70,000 people in the UK. There are a large number of different types of dystonia which affect people in widely differing ways. Unfortunately there is not yet a cure.

What treatment is available?

Various treatments are available for dystonia. These will be determined by the type and severity of the particular condition.

How do I cope with dystonia?

Most people do manage to develop effective strategies for coping with the challenges that their condition brings. Successful treatments to lessen their symptoms, effective pain control and the acquisition of sensory ‘tricks’ all help to make social situations easier.

Dystonia News

Award for research into blepharospasm

An award for research into blepharospasm has been launched by Fight for Sight and The Dystonia Society. Open for applications for 12 weeks from May 1st for research projects up to the value of £15,000. Read more
Neurology patients recalled in Northern Ireland

More than 2,500 neurology patients of Dr Michael Watt have been recalled for a case review by the Belfast Health and Social Care Trust. Read more
The law protecting your data is changing

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Fundraising Events

K2B: Keswick to Barrow

The Keswick to Barrow (K2B) Walk is a stunning sponsored walk taking place in the verdant English Lake District. Read more
Start: 12^th May, 2018 at 8:00am

End: 12^th May, 2018 at 5:00pm

Published: 14^th March, 2017

Updated: 24^th April, 2018

Author: David Wheaton

Location: Naddle Bridge, Keswick, CA12 4UB
Related topics:
- Walking events
- Fundraising events
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Prudential RideLondon 2018

CYCLISTS URGENTLY WANTED! Prudential RideLondon - the largest annual fundraising cycle event on the planet, which since 2013 has raised over £17 million for good causes. Read more
Start: 27^th July, 2018 at 6:00am

End: 29^th July, 2018 at 12:00am

Published: 21^st March, 2017

Updated: 16^th May, 2018

Author: David Wheaton

Location: London, London
Related topics:
- Cycling events
- Fundraising events
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