• Vinnie

    Conference for Parents and Carers

    Speakers announced for our conference for parents and carers of children and young people with dystonia to be held on Saturday 22nd September 2018 at Resource for London, 356 Holloway Road, London, N7 6PA. Read more

Providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia


Find out more

What is dystonia?

Dystonia is the term used to describe uncontrollable and sometimes painful muscle spasms caused by incorrect signals from the brain. It is estimated to affect at least 70,000 people in the UK. There are a large number of different types of dystonia which affect people in widely differing ways. Unfortunately there is not yet a cure.

Published:

Author: Sample Content

What treatment is available?

Various treatments are available for dystonia. These will be determined by the type and severity of the particular condition.

Published:

Author: Bernie McMahon

How do I cope with dystonia?

Most people do manage to develop effective strategies for coping with the challenges that their condition brings. Successful treatments to lessen their symptoms, effective pain control and the acquisition of sensory ‘tricks’ all help to make social situations easier.

Published:

Author: Bernie McMahon

Dystonia News

  • Dystonia Europe Survey

    Your personal dystonia experience and input can benefit the dystonia community today and in the future. Read more

  • Introducing Flavie Belanco

    Introducing your new Fundraising Assistant - Flavie Belanco Read more

  • Award for research into blepharospasm

    An award for research into blepharospasm has been launched by Fight for Sight and The Dystonia Society. Open for applications for research projects up to the value of £15,000. Closing date 31st July! Read more

Fundraising Events