Providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia


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What is dystonia?

Dystonia is the term used to describe uncontrollable and sometimes painful muscle spasms caused by incorrect signals from the brain. It is estimated to affect at least 70,000 people in the UK. There are a large number of different types of dystonia which affect people in widely differing ways. Unfortunately there is not yet a cure.

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What treatment is available?

Various treatments are available for dystonia. These will be determined by the type and severity of the particular condition.

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Author: Bernie McMahon

How do I live with dystonia?

Most people do manage to develop effective strategies for coping with the challenges that their condition brings. Successful treatments to lessen their symptoms, effective pain control and the acquisition of sensory ‘tricks’ all help to make social situations easier.

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Author: Bernie McMahon

Dystonia News

  • Office temporarily closed

    Our office is now closed until further notice though our team will continue to maintain business as usual working from home. Due to this our phone lines are currently closed, however, you can still leave a message by calling 0207 793 3651 or by sending your enquiries via email at [email protected] and someone will get back to you as soon as possible. Read more

  • Coronavirus and Dystonia

    We’re here for you. Here’s the latest guidance on coronavirus and dystonia, and where to get support. View our guidance Read more

  • Reach Out, Reach All

    Reach Out, Reach All is a new Dystonia UK project aiming to produce a series of short films about the milestone moments in our lives that for someone with dystonia present unique challenges. You can help us achieve our goal - support our crowdfunder today! Read more

Fundraising Events

  • Prudential RideLondon 2019

    CYCLISTS WANTED! Prudential RideLondon, 3rd August, 2019 - the largest annual fundraising cycle event on the planet! Read more