We exist to give hope and support to those living with dystonia. Creating UK and worldwide awareness.

Reach Out, Reach All

The Reach Out, Reach All campaign aims to bring the dystonia community together, through film, animation, podcasts and webinars.


Author: Bernie McMahon

Coronavirus and dystonia

28/05/2020 | We’re here for you. Here’s the latest guidance on coronavirus and dystonia, and where to get support.


Author: Bernie McMahon

Partner with us

Your organisation can easily join Team Dystonia UK and make a real difference to people living with dystonia throughout the country.



Our Impact


people reached in the last 3 months


on average spent on research a year


enquirers supported a year

Make a donation

Please select a donation amount: *
Set up a regular payment Donate

Latest news

Latest events

  • Dystonia around the world

    Join us in virtually travelling 25,000 miles from Dystonia UK’s HQ around the world and back, and raising £25,000 to help raise global awareness of the condition affecting 100,000 people in the UK alone each year. Read more

  • Fundraise your way

    Can't find what you are looking for? Do your own thing. Read more

  • Yorkshire Marathon 2020

    Take in some Yorkshire fresh air at this sell-out event and do something amazing for Dystonia UK. Read more