Providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia

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What is dystonia?

Dystonia is the term used to describe uncontrollable and sometimes painful muscle spasms caused by incorrect signals from the brain. It is estimated to affect at least 70,000 people in the UK. There are a large number of different types of dystonia which affect people in widely differing ways. Unfortunately there is not yet a cure.


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What treatment is available?

Various treatments are available for dystonia. These will be determined by the type and severity of the particular condition.


Author: Bernie McMahon

How do I cope with dystonia?

Most people do manage to develop effective strategies for coping with the challenges that their condition brings. Successful treatments to lessen their symptoms, effective pain control and the acquisition of sensory ‘tricks’ all help to make social situations easier.


Author: Bernie McMahon

Dystonia News

Fundraising Events

  • Prudential RideLondon 2018

    CYCLISTS URGENTLY WANTED! Prudential RideLondon - the largest annual fundraising cycle event on the planet, which since 2013 has raised over £17 million for good causes. Read more

  • Great North Run 2018

    We have 6 places remaining for this event! 'Officially the world's biggest half marathon'. Read more

  • Tea Party

    Host a tea party to raise funds for dystonia! Read more