We exist to give hope and support to those living with dystonia. Creating UK and worldwide awareness.

Welcome to our new website!

10/07/2020 | Throughout 2019/2020, we've been updating our brand and website with a fresher, more modern, more memorable look and feel.


Author: Bernie McMahon

Coronavirus and dystonia

28/05/2020 | We’re here for you. Here’s the latest guidance on coronavirus and dystonia, and where to get support.


Author: Bernie McMahon

Why become a member

Why should you join Team Dystonia UK as a member? You should join us if, like us, you think Dystonia Matters.



Our Impact


people reached in the last 3 months


on average spent on research a year


enquirers supported a year

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Latest news

Latest events

  • Dystonia around the world

    Join us in virtually travelling 25,000 miles from Dystonia UK’s HQ around the world and back, and raising £25,000 to help raise global awareness of the condition affecting 100,000 people in the UK alone each year. Read more

  • Fundraise your way

    Can't find what you are looking for? Do your own thing. Read more