We exist to give hope and support to those living with dystonia. Creating UK and worldwide awareness.

Dystonia Matters Digital: For Kids, Carers & Families

Our digital conference for children and families held over two days, the 19th and 20th of March 2021.


Author: Bernie McMahon

Coronavirus and dystonia

11/02/2021 | We’re here for you. Here’s the latest guidance on coronavirus and dystonia, and where to get support.


Author: Bernie McMahon

Dystonia Matters Webinars

Reach Out, Reach All Webinars featuring experts in neurological movement disorders.


Author: Bernie McMahon

Our Impact


people reached in the last 3 months


on average spent on research a year


enquirers supported a year

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Latest news

Latest events

  • Dystonia around the world

    Join us in virtually travelling 25,000 miles from Dystonia UK’s HQ around the world and back, and raising £25,000 to help raise global awareness of the condition affecting 100,000 people in the UK alone each year. Read more

  • Great North Run

    Event Type: Half-Marathon. Date: Sunday 12th September 2021. Location: Newcastle. Registration Fee: Free! Fundraising Target: £500. Read more

  • Virtual 2021 Virgin Money London Marathon

    Event Type: Marathon. Date: Sunday 3rd October 2021. Location: Virtual so wherever you are. Registration Fee: £15. Sponsorship Pledge £250. Read more