22/05/2026 | The Board of Trustees is pleased to announce the appointment of our new Chief Executive Officer, Alex Feis-Bryce. Read more
Explore The Info Hub where our amazing content can be found together in one easy to access place. From webinars to podcasts to animation - bringing real life stories and dystonia information to the dystonia community. Read more
Why should you join Team Dystonia UK as a member? You should join us if, like us, you think dystonia matters. Read more
We exist to give hope and support to those living with dystonia. Creating UK and worldwide awareness.
From local support group meet ups to national events, this is where you’ll find everything happening across the Dystonia UK community.
The Dystonia Matters Podcast! Sharing personal stories and talking to members of the dystonia community.
Whether you've been recently diagnosed or been living with dystonia for a number of years, it's normal to have questions. We've put together some of our most frequently asked questions to help navigate the journey. If you can't find the answer you are looking for, you can always get in touch, and we will do our very best to help you.
25/06/2025 | Dystonia UK calls for urgent action as new survey shows people with dystonia are being left behind by the NHS Read more
01/08/2025 | Victoria Wareham, our Director of Operations and Development, shares how we’re growing and improving support networks for the dystonia community. Read more
Give as you Live Online is a free and easy way to raise money for Dystonia UK, just by shopping online. Read more
Event Type: UK Race. Date: 13th September 2026. Location: UK. Registration Fee: Free! Fundraising Target: £500. Read more
Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500. Read more