Dystonia Animated is a planned series of short animations, as part of our Reach Out, Reach All campaign. They will be focusing on “What is dystonia?” in children and how the diagnosis affects their lives. Read more
The Dystonia Matters Podcast! Sharing personal stories and talking to members of the dystonia community. Read more
We have a range of merchandise available in our shop. From gorgeous black t-shirts to beautiful drinking bottles and takeaway mugs. Read more
We exist to give hope and support to those living with dystonia. Creating UK and worldwide awareness.
Our digital conference for children and families held over two days, the 19th and 20th of March 2021.
11/02/2021 | We’re here for you. Here’s the latest guidance on coronavirus and dystonia, and where to get support.
Reach Out, Reach All Webinars featuring experts in neurological movement disorders.
28/05/2020 | Dystonia UK have provided some useful information on what you might be able to expect as appointments resume. Read more
31/12/2020 | Our medical advisors share their thoughts on the COVID-19 vaccinations. Read more
31/03/2021 | We are so excited to present to you, the world premiere of our first ever animation!! Read more
Join us in virtually travelling 25,000 miles from Dystonia UK’s HQ around the world and back, and raising £25,000 to help raise global awareness of the condition affecting 100,000 people in the UK alone each year. Read more
Event Type: Half-Marathon. Date: Sunday 12th September 2021. Location: Newcastle. Registration Fee: Free! Fundraising Target: £500. Read more
Event Type: Marathon. Date: Sunday 3rd October 2021. Location: Virtual so wherever you are. Registration Fee: £15. Sponsorship Pledge £250. Read more