We exist to give hope and support to those living with dystonia. Creating UK and worldwide awareness.


Please donate just £1 to help support the dystonia community today. We are aiming to raise £100,000, one pound for every person in the UK thought to be affected by dystonia. #JustOnePound


Author: Bernie McMahon

Dystonia Matters Podcast

The Dystonia Matters Podcast! Sharing personal stories and talking to members of the dystonia community.


Author: Dayna Ferdinandi

Picnic & Play

Join the amazing #TeamDystoniaUK this spring and host your very own picnic using our fabulous fundraising pack!


Author: Bernie McMahon

Our Impact


people reached in the last 3 months


on average spent on research a year


enquirers supported a year

Make a donation

Please select a donation amount (required)
Set up a regular payment Donate

Latest news

Latest events

  • Dystonia Around The World

    Join us in the summer of 2022 travelling 25,000 virtual miles around the world, whilst raising £25,000, starting from our head office in London and being brought back home again. Read more

  • Great North Run

    Event Type: Half-Marathon. Date: TBD 2022 Location: Newcastle. Registration Fee: Free! Fundraising Target: £500. Read more

  • Virtual 2022 TCS London Marathon

    Event Type: Marathon. Date: Sunday 2nd October 2022. Location: Virtual ,so wherever you are. Registration Fee: £15. Sponsorship Pledge: £250. Read more