Providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia

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What is dystonia?

Dystonia is the term used to describe uncontrollable and sometimes painful muscle spasms caused by incorrect signals from the brain. It is estimated to affect at least 70,000 people in the UK. There are a large number of different types of dystonia which affect people in widely differing ways. Unfortunately there is not yet a cure.


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What treatment is available?

Various treatments are available for dystonia. These will be determined by the type and severity of the particular condition.


Author: Bernie McMahon

How do I live with dystonia?

Most people do manage to develop effective strategies for coping with the challenges that their condition brings. Successful treatments to lessen their symptoms, effective pain control and the acquisition of sensory ‘tricks’ all help to make social situations easier.


Author: Bernie McMahon

Dystonia News

  • Dystonia Essay Competition winners

    We are delighted to announce the winners of our Dystonia Essay Competition for medical students. Read more

  • Awareness in Wales

    John Meredith met with Dawn Bowden AM last week on behalf of dystonia patients and members of The Dystonia Society. Read more

  • Easyfundraising

    Even when shopping online you can raise funds for the Dystonia Society! Read more

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