Providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia


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What is dystonia?

Dystonia is the term used to describe uncontrollable and sometimes painful muscle spasms caused by incorrect signals from the brain. It is estimated to affect at least 70,000 people in the UK. There are a large number of different types of dystonia which affect people in widely differing ways. Unfortunately there is not yet a cure.

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Author: Sample Content

What treatment is available?

Various treatments are available for dystonia. These will be determined by the type and severity of the particular condition.

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Author: Bernie McMahon

How do I live with dystonia?

Most people do manage to develop effective strategies for coping with the challenges that their condition brings. Successful treatments to lessen their symptoms, effective pain control and the acquisition of sensory ‘tricks’ all help to make social situations easier.

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Author: Bernie McMahon

Dystonia News

  • Join our team

    We are looking for a community fundraiser to join our busy and friendly team. Part Time 1 year contract (21 Hours Per Week) in London. Up to £27,000 p.a. pro-rated and dependent on skills and experience. This exciting opportunity will be the first point of contact for new and existing donors and supporters, helping us to build important funding relationships across our wide range of supporters. Read more

  • Research study now recruiting

    Research study now recruiting adult and paediatric patients who have a DBS implant for primary dystonia Read more

  • PressOp™

    A team of researchers at the Oxford Eye Hospital, based at John Radcliffe Hospital, have created a device designed to help individuals with Blepharospasm. Read more

Fundraising Events

  • Prudential RideLondon 2019

    CYCLISTS WANTED! Prudential RideLondon, 3rd August, 2019 - the largest annual fundraising cycle event on the planet! Read more