Providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia

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What is dystonia?

Dystonia is the term used to describe uncontrollable and sometimes painful muscle spasms caused by incorrect signals from the brain. It is estimated to affect at least 70,000 people in the UK. There are a large number of different types of dystonia which affect people in widely differing ways.



What treatment is available?

Various treatments are available for dystonia. These will be determined by the type and severity of the particular condition.


Author: Bernie McMahon

How do I cope with dystonia?

Most people do manage to develop effective strategies for coping with the challenges that their condition brings. Successful treatments to lessen their symptoms, effective pain control and the acquisition of sensory ‘tricks’ all help to make social situations easier.


Author: Bernie McMahon

Dystonia News

  • Botulinum toxin treatment

    We asked Dr Marie-Helene Marion for her views on what can be done for people with dystonia when botulinum toxin treatment is not working well. Read more

  • Introducing Andrea West

    Introducing your new Chief Executive - Andrea West Read more

  • The Dystonia Society need your photos!

    We work to be the voice of everyone in the UK affected by dystonia. To enable us to do that we need your help - would you like to be one of the faces of The Dystonia Society? Read more

Fundraising Events

  • London Marathon 2018

    22 April 2018: The London Marathon has an absolutely amazing atmosphere that really needs to be experienced in person. Read more

  • Edinburgh Marathon Festival

    26 /27 May 2018: The excellent Edinburgh Marathon Festival is a terrific race series to achieve those PBs. Read more

  • Just Walk

    An event that inspires you to take on a challenge that is right for you with route distances of 10km, 25km, 35km, 45km and the BIG 60km! Read more