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  • Fundraise for us
  1. Home
  2. Fundraise for us

Fundraise for us

We couldn't do what we do without the fundraising efforts of amazing supporters like you.

Fundraise for Dystonia UK - where every step, every stride, and every smile makes a difference! 

Are you ready to join a community of champions, making waves to support those affected by dystonia? We're calling on YOU to be part of something truly extraordinary. Whether you're a seasoned fundraiser or just dipping your toes into the world of philanthropy, there's a place for you.

Dystonia UK is not just an organisation; we're a community united by a shared mission:

  • to empower
  • to support
  • to inspire change 

Dystonia may challenge us, but together, we're unstoppable. 

Here's your chance to turn your passion into purpose! From adrenaline-fueled challenges to creative events that spark joy, the possibilities are endless.  

And guess what? When you sign up to fundraise with us, you're not alone! You'll receive a FREE fundraising pack bursting with innovative ideas and inspiration to kickstart your journey. But that's not all - we'll throw in an exclusive Dystonia UK t-shirt or vest to wear proudly as you champion our cause. 

But wait.. there's more! Our incredible fundraising team is here to support you every step of the way. Whether you're running marathons, baking cupcakes, or dreaming up something entirely unique, we're here to cheer you on and offer guidance whenever you need it. 

So are you ready to take that first step - it could be the most fun you have all year! Lets do this!

Have any questions take a look at our Fundraising and volunteering FAQs or contact the Fundraising Team via [email protected]

Challenge events

Challenge events

Choose your own challenge from a wide variety of events across the UK and get sponsored to do something amazing! Read more

Published: 26th June, 2020

Updated: 29th June, 2020

Author: Bernie McMahon

DIY fundraising

DIY fundraising

Help us raise vital funds and awareness. Our fundraising pack is brimming with an A – Z of ideas. Let’s put the FUN back into fundraising. Read more

Published: 1st March, 2023

Updated: 26th March, 2024

Author: Bernie McMahon

Leap for dystonia

Leap for dystonia

Feel the full force of flying through the clouds from over 10,000ft at up to 120mph! It’s a truly unforgettable experience. Read more

Published: 8th March, 2023

Updated: 7th February, 2025

Author: Shane Hickey

Partner with us

Partner with us

Your organisation can easily join Team Dystonia UK and make a real difference to people living with dystonia throughout the country. Read more

Published: 9th September, 2019

Updated: 27th March, 2024

Author:

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Latest

  • A warm welcome to our new CEO

    A warm welcome to our new CEO

    22/05/2026 | The Board of Trustees is pleased to announce the appointment of our new Chief Executive Officer, Alex Feis-Bryce.

  • Alex Feis-Bryce

    Alex Feis-Bryce

    Chief Executive Officer

  • TCS London Marathon 2027

    TCS London Marathon 2027

    Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500.

  • TCS London Marathon 2027

    TCS London Marathon 2027

    Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500.

Most read

  • What is dystonia?

    What is dystonia?

    Dystonia is a neurological condition that is estimated to affect at least 100,000 people in the UK. Learn more about it here.

  • What are the symptoms?

  • What causes dystonia?

    What causes dystonia?

    The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.

  • What are the symptoms?

  • What are the symptoms?

  • What are the common treatments?

  • What are the causes?

  • What are the common treatments?

  • What are the causes?

  • Who does it affect?

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89 Albert Embankment
London SE1 7TP
[email protected]
020 7793 3651

Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)

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