Living with dystonia can feel isolating, but you're not alone.
Support groups have been at the heart of Dystonia UK for over 40 years, built by people who believed no one should face dystonia alone. That mission still drives us today.
Whether you're diagnosed or supporting someone else, connecting with others who understand can truly help.
Our local support groups are friendly, welcoming spaces where you can connect, share, and feel seen. These aren’t just meetings, they’re communities where real conversations happen, friendships grow, and support flows both ways. Plus, you don’t have to explain everything. You can just be yourself and be understood.
"I really enjoy the social side of being with others with the same condition; we have all become friends!" - Kent group attendee
"I love talking to people who can relate to my experiences with dystonia." - Cambridgeshire group attendee
Don't see a support group near you? Check out how you can get involved or let us know you’d like one in your area.
We have in-person support groups across the UK, and we’d love to connect you with one nearby. Read more
On Facebook we have support groups for Scotland, Wales, Northern Ireland and each county in England. There are also themed groups, for example Parents and Carers. Read more
We’ve gathered some of the most common questions about our support groups to help you feel confident and informed before joining. Read more
Read our review of Dystonia UK’s support networks with some updates on planning for the future. Read more
From local support group meet ups to national events, this is where you’ll find everything happening across the Dystonia UK community. Read more