We are committed to ensuring your voice is at the heart of our work.
We want your stories and voices to be heard. Take a look below to see all the ways you can get involved and help spread the word that dystonia matters.
Join Team Dystonia UK as a member if, like us, you think dystonia matters. Read more
Working groups are a way of enabling the sharing of information and personal experiences between individuals to achieve solutions and influence decisions. Joining one can be a great way to make sure the voice of those living with dystonia is represented. Read more
We can achieve the most impact if we have real patient stories to tell. Read more
Use your voice to support one of our campaigns including Dystonia Awareness Month and Reach Out, Reach All. Read more
We use surveys and government consultations to collect important data that form key evidence in reports and other influencing work that we produce. Read more