Skip over main navigation
  • Log in
  • Basket: (0 items)
Dystonia UK
  • Twitter
  • Facebook
  • Instagram
  • YouTube
Membership Donate
Menu
  • About dystonia
    • What is dystonia?
    • What causes dystonia?
    • Types of dystonia
    • Diagnosis and treatment
  • Help and support
    • How we support you
    • The Info Hub
    • Just diagnosed
    • Kids, Carers & Families
    • Living with dystonia
    • Your stories
    • Your local support group
    • Our events
    • Frequently asked questions
  • Membership
    • Dystonia UK Membership
    • Join or renew your membership
  • Support us
    • Donate
    • Become a member
    • Fundraise for us
    • Other ways to give
    • Partner with us
    • Volunteer for us
    • Campaigns
    • Your voice heard
    • Shop
  • About us
    • Who we are
    • The team
    • Our governance
    • Policy work
    • Research
    • Professionals
    • News
  • Admin
    • Log in
  • Basket: (0 items)
  • Support for professionals
  1. About us
  2. Professionals

Support for professionals

Together, we can help make sure everyone gets the understanding and care they deserve.

Many health and social care professionals may only see a few cases of dystonia in their whole career - and that’s where we come in.

We’re here to make things easier. While you focus on care and treatment, we support people living with dystonia with the practical aspects of everyday life. From sharing best practice and trusted resources to campaigning for improved neurology services, we’re here to help you feel confident in recognising and supporting people with dystonia and their families.

How we support you:

  • Access booklets, webinars and other resources to support your clinical work
  • Explore key dystonia guidelines
  • Connect with the wider community at our events
Best practice guide

Best practice guide

Access our Best Practice Guide providing guidance for health and social care professionals and managers involved in the care of patients with dystonia. Read more

Published: 3rd December, 2025

Updated: 4th December, 2025

Author: Victoria Wareham

Dystonia guidance

Dystonia guidance

Find valuable reading resources and trusted guidelines to support informed, confident clinical practice. Read more

Published: 3rd December, 2025

Updated: 4th December, 2025

Author: Victoria Wareham

Info hub

Info hub

Explore our Info Hub for trusted, patient-focused resources you can confidently signpost your dystonia patients to, improving understanding and support. Read more

Published: 3rd December, 2025

Author: Victoria Wareham

Request printed resources

Request printed resources

Order free printed dystonia resources for your clinic room, helping you support and inform your dystonia patients. Read more

Published: 3rd December, 2025

Author: Victoria Wareham

Sign up to our e-news

Sign up to our e-news

To get tailored news and updates for professionals straight to your inbox simply sign up to our professional e-newsletter. Read more

Published: 3rd December, 2025

Author: Victoria Wareham

Support our work

Support our work

Find ways to get involved in our work, supporting patients beyond the clinic and helping to build greater understanding of dystonia. Read more

Published: 3rd December, 2025

Author: Victoria Wareham

Upcoming events

Upcoming events

From local support group meet ups to national events, this is where you’ll find everything happening across the Dystonia UK community. Read more

Published: 1st September, 2025

Updated: 4th December, 2025

Author: Bernie McMahon

What is dystonia?

What is dystonia?

Dystonia is a neurological condition that is estimated to affect at least 100,000 people in the UK. Learn more about it here. Read more

Published: 9th September, 2019

Updated: 3rd December, 2025

Author:

Back to top

Latest

  • A warm welcome to our new CEO

    A warm welcome to our new CEO

    22/05/2026 | The Board of Trustees is pleased to announce the appointment of our new Chief Executive Officer, Alex Feis-Bryce.

  • Alex Feis-Bryce

    Alex Feis-Bryce

    Chief Executive Officer

  • TCS London Marathon 2027

    TCS London Marathon 2027

    Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500.

  • TCS London Marathon 2027

    TCS London Marathon 2027

    Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500.

Most read

  • What is dystonia?

    What is dystonia?

    Dystonia is a neurological condition that is estimated to affect at least 100,000 people in the UK. Learn more about it here.

  • What are the symptoms?

  • What causes dystonia?

    What causes dystonia?

    The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.

  • What are the symptoms?

  • What are the symptoms?

  • What are the common treatments?

  • What are the causes?

  • What are the common treatments?

  • What are the causes?

  • Who does it affect?

Tag cloud

Airdrie DS Group Cambridgeshire DS Group Edinburgh DS Group Hertfordshire DS Group Kent DS Group Lancashire & Fylde DS Group Liverpool DS Group London and Surrey DS Group Manchester DS Group North East DS Group North Shropshire Borders DS Group Northern Ireland DS Group Oxford DS Group Torbay & Exeter DS Group West Midlands DS Group West Sussex DS Group

Subscribe to receive regular e-news from Dystonia UK

* indicates required
  • Sitemap
  • Terms & Conditions
  • Privacy Policy
  • Update your communication preferences


  • Twitter
  • Facebook
  • Instagram
  • YouTube

Registered office

89 Albert Embankment
London SE1 7TP
[email protected]
020 7793 3651

Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)

Help Dystonia UK

Donate Volunteer Fundraise