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The Info Hub

Blepharospasm - Lifting the Lid

Blepharospasm - Lifting the Lid

Blepharospasm - Lifting the Lid’ by Professor Brigitte Girard, an ophthalmologist who has been treating patients for more than twenty years. Request your FREE copy now! Read more

Published: 31st August, 2023

Author: Bernie McMahon

COVID-19 pandemic specials

COVID-19 pandemic specials

During 2020, Dystonia UK hosted two webinars during the COVID-19 pandemic. One on topics surrounding dystonia and botulinum toxin treatment during the coronavirus outbreak and one exploring the use of physiotherapy and pain management techniques. Read more

Published: 13th September, 2022

Updated: 16th January, 2023

Author: Bernie McMahon

Episode 1: Dani explains dystonia

Episode 1: Dani explains dystonia

In this episode we are so excited to introduce you to Dani, Charlie and some of their family. They share what their lives are like with a dystonia diagnosis. Read more

Published: 30th March, 2021

Updated: 14th December, 2022

Author: Bernie McMahon

Episode 2: Charlie at the children's hospital

Episode 2: Charlie at the children's hospital

Episode 2 of Dystonia Animated takes us on a visit to the hospital with Charlie. Read more

Published: 1st October, 2021

Updated: 2nd May, 2023

Author: Bernie McMahon

Episode 3: Sam's surgery story

Episode 3: Sam's surgery story

In episode 3 we introduce Sam and her family. Sam shares her experiences of deep brain stimulation surgery. Read more

Published: 21st September, 2022

Updated: 25th January, 2023

Author: Bernie McMahon

Medikidz comic book

Medikidz comic book

The Medikidz are a team of incredible medical superheroes who help children understand more about their health conditions. In this comic book, the team help a young girl called Lauren learn more about her dystonia. Request your free copy now! Read more

Published: 30th August, 2023

Author: Bernie McMahon

Season 1

Season 1

Season one of our podcast was a huge success with over a thousand listeners tuning in to hear stories from people across the dystonia community. Six episodes covering a range of topics from work to mental health. Read more

Published: 2nd September, 2022

Updated: 3rd April, 2023

Author: Bernie McMahon

Season 2

Season 2

We're delighted to launch season two of our popular ‘Dystonia Matters Podcast’ during 'Dystonia Awareness Month' 2022. Throughout this series, we'll be sharing even more of your stories as we chat to members of the dystonia community about why dystonia matters. Read more

Published: 2nd September, 2022

Updated: 3rd April, 2023

Author: Bernie McMahon

Season 3

Season 3

The popular 'Dystonia Matters Podcast' continues in Season Three with even more stories from the dystonia community. Read more

Published: 3rd April, 2023

Author: Bernie McMahon

Series 1

Series 1

In October 2020, we were awarded a grant by the Coronavirus Community Support Fund, distributed by The National Lottery Community Fund. Thanks to this funding we were able to further grow our 'Reach Out, Reach All' campaign including hosting a full series of webinars. Read more

Published: 13th September, 2022

Updated: 7th June, 2023

Author: Bernie McMahon

Series 2

Series 2

During 'Dystonia Awareness Month' 2022, we launched Series Two of our 'Reach Out, Reach All' webinars. Covering topics from sleep to mental health. Read more

Published: 13th September, 2022

Updated: 7th June, 2023

Author: Bernie McMahon

Series 3

Series 3

Series Three of our 'Reach Out, Reach All' webinars launched in 2023. Read more

Published: 7th June, 2023

Author: Bernie McMahon

What is dystonia? information booklet

What is dystonia? information booklet

Our ’What is dystonia?’ information booklet includes an overview of dystonia, symptoms, causes and the different forms and types. Request your free copy now! Read more

Published: 20th February, 2023

Updated: 30th August, 2023

Author: Bernie McMahon

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Latest

  • Your Questions Answered with Dr Miles Humberstone

    Your Questions Answered with Dr Miles Humberstone

    Q&A with Dr Miles Humberstone. This webinar took place on 26th September 2023 during 'Dystonia Awareness Month'.

  • Fernanda Aguilar Perez

    Fernanda Aguilar Perez

  • Emily Birden

    Emily Birden

  • Thank you for an amazing Dystonia Awareness Month 2023!

    Thank you for an amazing Dystonia Awareness Month 2023!

Most read

  • What is dystonia?

    What is dystonia?

    Dystonia is a neurological movement disorder that is estimated to affect at least 100,000 people in the UK. Learn about it here and request an information booklet.

  • What are the symptoms?

  • What causes dystonia?

    What causes dystonia?

    The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.

  • What are the symptoms?

  • What are the symptoms?

  • What are the common treatments?

  • What are the common treatments?

  • What are the causes?

  • What are the causes?

  • Who does it affect?

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Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)


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