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The Info Hub

Blepharospasm - Lifting the Lid

Blepharospasm - Lifting the Lid

Blepharospasm - Lifting the Lid’ by Professor Brigitte Girard, an ophthalmologist who has been treating patients for more than twenty years. Request your FREE copy now! Read more

Published: 31st August, 2023

Author: Bernie McMahon

COVID-19 pandemic specials

COVID-19 pandemic specials

During 2020, Dystonia UK hosted two webinars during the COVID-19 pandemic. One on topics surrounding dystonia and botulinum toxin treatment during the coronavirus outbreak and one exploring the use of physiotherapy and pain management techniques. Read more

Published: 13th September, 2022

Updated: 16th January, 2023

Author: Bernie McMahon

Dystonia Animated Episode 1: Dani explains dystonia

Dystonia Animated Episode 1: Dani explains dystonia

In this episode of Dystonia Animated we are so excited to introduce you to Dani, Charlie and some of their family. They share what their lives are like with a dystonia diagnosis. Read more

Published: 30th March, 2021

Updated: 31st July, 2025

Author: Bernie McMahon

Dystonia Animated Episode 2: Charlie at the children's hospital

Dystonia Animated Episode 2: Charlie at the children's hospital

Episode 2 of Dystonia Animated takes us on a visit to the hospital with Charlie. Read more

Published: 1st October, 2021

Updated: 31st July, 2025

Author: Bernie McMahon

Dystonia Animated Episode 3: Sam's surgery story

Dystonia Animated Episode 3: Sam's surgery story

In episode 3 of Dystonia Animated we introduce Sam and her family. Sam shares her experiences of deep brain stimulation surgery. Read more

Published: 21st September, 2022

Updated: 31st July, 2025

Author: Bernie McMahon

Medikidz comic book

Medikidz comic book

The Medikidz are a team of incredible medical superheroes who help children understand more about their health conditions. Request your free comic book now! Read more

Published: 30th August, 2023

Updated: 5th August, 2024

Author: Bernie McMahon

Season 1

Season 1

Season one of our podcast was a huge success with over a thousand listeners tuning in to hear stories from people across the dystonia community. Six episodes covering a range of topics from work to mental health. Read more

Published: 2nd September, 2022

Updated: 3rd April, 2023

Author: Bernie McMahon

Season 2

Season 2

We're delighted to launch season two of our popular ‘Dystonia Matters Podcast’ during 'Dystonia Awareness Month' 2022. Throughout this series, we'll be sharing even more of your stories as we chat to members of the dystonia community about why dystonia matters. Read more

Published: 2nd September, 2022

Updated: 3rd April, 2023

Author: Bernie McMahon

Season 3

Season 3

The popular 'Dystonia Matters Podcast' continues in Season Three with even more stories from the dystonia community. Read more

Published: 3rd April, 2023

Author: Bernie McMahon

Season 4

Season 4

The 'Dystonia Matters Podcast' returns for its fourth season, with lots of new, fresh stories from those within the dystonia community. Read more

Published: 27th March, 2024

Updated: 28th March, 2024

Author: Sophia Michael

Season 5

Season 5

The 'Dystonia Matters Podcast' is back for season five with more incredible stories from the dystonia community. Read more

Published: 8th April, 2025

Updated: 10th April, 2025

Author: Bernie McMahon

Series 1

Series 1

In October 2020, we were awarded a grant by the Coronavirus Community Support Fund, distributed by The National Lottery Community Fund. Thanks to this funding we were able to further grow our 'Reach Out, Reach All' campaign including hosting a full series of webinars. Read more

Published: 13th September, 2022

Updated: 7th June, 2023

Author: Bernie McMahon

Series 2

Series 2

During 'Dystonia Awareness Month' 2022, we launched Series Two of our 'Reach Out, Reach All' webinars. Covering topics from sleep to mental health. Read more

Published: 13th September, 2022

Updated: 7th June, 2023

Author: Bernie McMahon

Series 3

Series 3

Series Three of our 'Reach Out, Reach All' webinars launched in 2023. Read more

Published: 7th June, 2023

Author: Bernie McMahon

What is dystonia? Digital booklet

What is dystonia? Digital booklet

Our free digital information booklet answers the most common question we get asked - What is dystonia? It includes an overview of dystonia, symptoms, causes and the different forms and types. Read more

Published: 16th September, 2025

Author: Victoria Wareham

What is dystonia? Printed booklet

What is dystonia? Printed booklet

Our printed information booklet answers the most common question we get asked - What is dystonia? It includes an overview of dystonia, symptoms, causes and the different forms and types. Read more

Published: 20th February, 2023

Updated: 16th September, 2025

Author: Bernie McMahon

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Latest

  • A warm welcome to our new CEO

    A warm welcome to our new CEO

    22/05/2026 | The Board of Trustees is pleased to announce the appointment of our new Chief Executive Officer, Alex Feis-Bryce.

  • Alex Feis-Bryce

    Alex Feis-Bryce

    Chief Executive Officer

  • TCS London Marathon 2027

    TCS London Marathon 2027

    Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500.

  • TCS London Marathon 2027

    TCS London Marathon 2027

    Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500.

Most read

  • What is dystonia?

    What is dystonia?

    Dystonia is a neurological condition that is estimated to affect at least 100,000 people in the UK. Learn more about it here.

  • What are the symptoms?

  • What causes dystonia?

    What causes dystonia?

    The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.

  • What are the symptoms?

  • What are the symptoms?

  • What are the common treatments?

  • What are the causes?

  • What are the common treatments?

  • What are the causes?

  • Who does it affect?

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Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)

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