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  • Volunteer for us
  1. Support us
  2. Volunteer for us

Volunteer for us

You can meet new people. You can learn new skills.
You can make a difference.

Volunteering with Dystonia UK is more than just giving your time, it’s about being part of something and supporting our community. Our incredible network of volunteers across the UK make everything we do possible. Together, we raise awareness, support the community, and improve the lives of people living with dystonia.

Whether you have a few hours to spare or want to take on a bigger role, we welcome people from all walks of life to join our community. From local group coordinators to our Board of Trustees, and from event support to cheer point champions, every volunteer helps us make a real difference.

"I thoroughly enjoy working as a volunteer at Dystonia UK because all the staff are brilliant people to work with and hugely knowledgeable. I also feel a great sense of pride when I have been able to offer support and answer people's questions about what dystonia is and how I and Dystonia UK can help them now and in the future. " - Nicholas, Dystonia UK volunteer

Explore volunteering roles

Explore volunteering roles

There are plenty of different ways you can volunteer to support our work and help improve the lives of people living with dystonia. Read more

Published: 21st May, 2020

Updated: 4th December, 2025

Author: Bernie McMahon

Fundraising and volunteering FAQs

Fundraising and volunteering FAQs

Find answers to frequently asked questions related to the various ways you can support Dystonia UK including fundraising and volunteering. Read more

Published: 9th June, 2021

Updated: 7th November, 2025

Author: Bernie McMahon

Other ways to get involved

Other ways to get involved

There are lots of other ways to support our work without becoming a volunteer. Take a look and get involved! Read more

Published: 21st May, 2020

Updated: 13th November, 2025

Author: Bernie McMahon

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Latest

  • A warm welcome to our new CEO

    A warm welcome to our new CEO

    22/05/2026 | The Board of Trustees is pleased to announce the appointment of our new Chief Executive Officer, Alex Feis-Bryce.

  • Alex Feis-Bryce

    Alex Feis-Bryce

    Chief Executive Officer

  • TCS London Marathon 2027

    TCS London Marathon 2027

    Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500.

  • TCS London Marathon 2027

    TCS London Marathon 2027

    Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500.

Most read

  • What is dystonia?

    What is dystonia?

    Dystonia is a neurological condition that is estimated to affect at least 100,000 people in the UK. Learn more about it here.

  • What are the symptoms?

  • What causes dystonia?

    What causes dystonia?

    The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.

  • What are the symptoms?

  • What are the symptoms?

  • What are the common treatments?

  • What are the causes?

  • What are the common treatments?

  • What are the causes?

  • Who does it affect?

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89 Albert Embankment
London SE1 7TP
[email protected]
020 7793 3651

Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)

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