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Campaigns

Dystonia Awareness Month

Dystonia Awareness Month

Every September, Dystonia UK and the dystonia community come together to help raise awareness of dystonia. Read more

Published: 1st September, 2025

Updated: 1st October, 2025

Author:

Just One Pound

Just One Pound

Please donate just £1 to help support the dystonia community today. We are aiming to raise £100,000, one pound for every person in the UK thought to be affected by dystonia. #JustOnePound Read more

Published: 19th October, 2021

Updated: 14th November, 2022

Author: Bernie McMahon

Reach Out, Reach All

Reach Out, Reach All

The Reach Out, Reach All campaign aims to bring the dystonia community together, through film, animation, podcasts and webinars. Read more

Published: 24th June, 2020

Updated: 8th February, 2021

Author: Bernie McMahon

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Latest

  • A warm welcome to our new CEO

    A warm welcome to our new CEO

    22/05/2026 | The Board of Trustees is pleased to announce the appointment of our new Chief Executive Officer, Alex Feis-Bryce.

  • Alex Feis-Bryce

    Alex Feis-Bryce

    Chief Executive Officer

  • TCS London Marathon 2027

    TCS London Marathon 2027

    Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500.

  • TCS London Marathon 2027

    TCS London Marathon 2027

    Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500.

Most read

  • What is dystonia?

    What is dystonia?

    Dystonia is a neurological condition that is estimated to affect at least 100,000 people in the UK. Learn more about it here.

  • What are the symptoms?

  • What causes dystonia?

    What causes dystonia?

    The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.

  • What are the symptoms?

  • What are the symptoms?

  • What are the common treatments?

  • What are the causes?

  • What are the common treatments?

  • What are the causes?

  • Who does it affect?

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Airdrie DS Group Cambridgeshire DS Group Edinburgh DS Group Hertfordshire DS Group Kent DS Group Lancashire & Fylde DS Group Liverpool DS Group London and Surrey DS Group Manchester DS Group North East DS Group North Shropshire Borders DS Group Northern Ireland DS Group Oxford DS Group Torbay & Exeter DS Group West Midlands DS Group West Sussex DS Group

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Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)

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