Your local support group

We facilitate 70+ physical and online support groups that are run by our amazing volunteer coordinators which give the opportunity to share experiences and meet others with dystonia.

Join our online support groups

On Facebook we have support groups for Scotland, North Wales, Northern Ireland and each county in England. There are also themed Facebook support groups for example our Parents and Carers of children and young people group.

Discover our online groups here.

Find your local support group

We have physical support groups all over the UK. Enter your postcode below to find your nearest local group.

1. Berkshire

2. Cornwall

3. East Hampshire

4. Cambridgeshire

5. East Sussex

6. East Yorkshire

7. Furness and South Lakes

8. Glasgow

9. Hertfordshire

10. Kent

11. Lancashire and Fylde

12. Liverpool and Merseyside

13. London and Surrey

14. Manchester

15. North East

16. North Shropshire Borders

17. North Wales

18. North West & Midlands Group for dystonias affecting speech, eating & swallowing

19. Oxford

20. Plymouth

21. Somerset

22. West Midlands

23. West Sussex

24. Worcestershire

Virtual 2021 Virgin Money London Marathon

Event Type: Marathon. Date: Sunday 3rd October 2021. Location: Virtual so wherever you are. Registration Fee: £15. Sponsorship Pledge £250.
Virtual 2021 Virgin Money London Marathon

Event Type: Marathon. Date: Sunday 3rd October 2021. Location: Virtual so wherever you are. Registration Fee: £15. Sponsorship Pledge £250.
Understanding Personal Independence Payment with Dystonia UK and the Brain Charity

Dystonia UK and The Brain Charity, Discuss applying for PIP (Personal Independence Payment) and what you may be entitled to.
Dystonia Matters Webinars

Reach Out, Reach All Webinars featuring experts in neurological movement disorders.

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Callum's story

Callum's story, as told by his dad Neil. Callum is a young man with Down Syndrome who has neck dystonia (cervical dystonia).
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Research update
What is dystonia?

Dystonia is a neurological movement disorder that is estimated to affect at least 100,000 people in the UK.
Coronavirus and dystonia

11/02/2021 | We’re here for you. Here’s the latest guidance on coronavirus and dystonia, and where to get support.
Lockdown Unlocked

Gemma-Louise Stevenson, Tully Kearney and Tegan Vincent-Cooke discuss a variety of topics as part of our Lockdown Unlocked series.
What are the symptoms?
What are the causes?
Date and times