Your local support group

We facilitate 70+ physical and online support groups that are run by our amazing volunteer coordinators which give the opportunity to share experiences and meet others with dystonia.

Join our online support groups

On Facebook we have support groups for Scotland, North Wales, Northern Ireland and each county in England. There are also themed Facebook support groups for example our Parents and Carers of children and young people group.

Discover our online groups here.

Find your local support group

We have physical support groups all over the UK. Enter your postcode below to find your nearest local group.

1. Berkshire

2. Cornwall

3. East Hampshire

4. Cambridgeshire

5. East Yorkshire

6. Furness and South Lakes

7. Glasgow

8. Hertfordshire

9. Kent

10. Lancashire and Fylde

11. Liverpool and Merseyside

12. London and Surrey

13. Manchester

14. North East

15. North Shropshire Borders

16. North Wales

17. North West & Midlands Group for dystonias affecting speech, eating & swallowing

18. Oxford

19. Plymouth

20. Somerset

21. West Midlands

22. West Sussex

23. Worcestershire

Myoclonus dystonia

For people living with a genetic confirmation of myoclonus dystonia syndrome associated to a mutation in epsilon-sarcoglycan (SGCE or DYT11) gene or a parent or carer of someone living with the condition. Takes 10-15 minutes.
Virtual appointments (Scotland)

For people living with a neurological condition, people who care for someone living with a neurological condition, or those who are close to someone who is living with a neurological condition, in Scotland. Takes 10-15 minutes.
2012/13

Financial Statements for the year ended 31 March 2013.
2013/14

Financial Statements for the year ended 31 March 2014.

What is dystonia?

Dystonia is a neurological movement disorder that is estimated to affect at least 100,000 people in the UK.
What are the symptoms?
COVID-19 vaccinations

31/12/2020 | Our medical advisors share their thoughts on the COVID-19 vaccinations.
Coronavirus and dystonia

11/02/2021 | We’re here for you. Here’s the latest guidance on coronavirus and dystonia, and where to get support.
What causes dystonia?

The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.
What are the common treatments?
What are the causes?
What are the symptoms?
What are the symptoms?
What are the common treatments?