Our conferences

Dystonia Matters Digital

Our first ever digital conference, held over two days, the 25th and 26th of September 2020. Read more

Our digital conference for children and families held over two days, the 19th and 20th of March 2021. Read more

Myoclonus dystonia

For people living with a genetic confirmation of myoclonus dystonia syndrome associated to a mutation in epsilon-sarcoglycan (SGCE or DYT11) gene or a parent or carer of someone living with the condition. Takes 10-15 minutes.
Virtual appointments (Scotland)

For people living with a neurological condition, people who care for someone living with a neurological condition, or those who are close to someone who is living with a neurological condition, in Scotland. Takes 10-15 minutes.
2012/13

Financial Statements for the year ended 31 March 2013.
2013/14

Financial Statements for the year ended 31 March 2014.

What is dystonia?

Dystonia is a neurological movement disorder that is estimated to affect at least 100,000 people in the UK.
What are the symptoms?
COVID-19 vaccinations

31/12/2020 | Our medical advisors share their thoughts on the COVID-19 vaccinations.
Coronavirus and dystonia

11/02/2021 | We’re here for you. Here’s the latest guidance on coronavirus and dystonia, and where to get support.
What causes dystonia?

The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.
What are the common treatments?
What are the causes?
What are the symptoms?
What are the symptoms?
What are the common treatments?