Our conferences

Dystonia Matters Digital

Our first ever digital conference, held over two days, the 25th and 26th of September 2020. Read more

Save the date! 20th March 2021. Read more

Virtual 2021 Virgin Money London Marathon

Event Type: Marathon. Date: Sunday 3rd October 2021. Location: Virtual so wherever you are. Registration Fee: £15. Sponsorship Pledge £250.
Virtual 2021 Virgin Money London Marathon

Event Type: Marathon. Date: Sunday 3rd October 2021. Location: Virtual so wherever you are. Registration Fee: £15. Sponsorship Pledge £250.
Understanding Personal Independence Payment with Dystonia UK and the Brain Charity

Dystonia UK and The Brain Charity, Discuss applying for PIP (Personal Independence Payment) and what you may be entitled to.
Dystonia Matters Webinars

Reach Out, Reach All Webinars featuring experts in neurological movement disorders.

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Callum's story

Callum's story, as told by his dad Neil. Callum is a young man with Down Syndrome who has neck dystonia (cervical dystonia).
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Research update
What is dystonia?

Dystonia is a neurological movement disorder that is estimated to affect at least 100,000 people in the UK.
Coronavirus and dystonia

11/02/2021 | We’re here for you. Here’s the latest guidance on coronavirus and dystonia, and where to get support.
Lockdown Unlocked

Gemma-Louise Stevenson, Tully Kearney and Tegan Vincent-Cooke discuss a variety of topics as part of our Lockdown Unlocked series.
What are the symptoms?
What are the causes?
Date and times