This event has now passed, but please do sign up to our e-news so you can be the first to hear about our future events including Dystonia Matters Live 2024.

#DMLive2023 Recordings

100,000 Voices

We kicked off #DystoniaMattersLive2023 this summer with a chance to hear awareness raising champions from across the country share the different ways they magnify the voices of the 100,000 people in the UK diagnosed with #Dystonia! We are delighted to share this session with you all during #DystoniaAwarenessMonth. See how some of our amazing community are raising awareness!!

From all of as at Team Dystonia UK, a huge thank you for joining us at Dystonia Matters Live 2023!

We recently had the pleasure of meeting many of you at our very own #DMLive2023 up in Newcastle!

It was a wonderful opportunity for people living with dystonia and professionals alike to come together to talk all things dystonia. We discussed everything from getting the best out of the NHS to exercising with dystonia, from important policy issues to looking after our mental health. We even threw an 80s party to celebrate Dystonia UK's 40th anniversary!

Thank you to all of our speakers for giving up their time and expertise to join us at this event. It was true privilege to listen to so many of our patient speakers talk with such raw honesty about their experiences and we know this was extremely valuable for many of you who attended.

We’d like to thank our generous sponsors for helping make this event happen.

Thank you to all our volunteers from across the country who supported this event with everything from building goody bags to sourcing last minute helium!

Last but not least, we’d like to thank those who joined us for making this such a fabulous event. We were so glad so many of you were there to share your stories and support others on similar journeys.

Finally, if you didn't manage to join, we'll be releasing recordings in Dystonia Awareness Month (September) so watch this space!

And keep an eye out for Dystonia Matters Live 2024 coming soon!

This event has now passed, but please do sign up to our e-news so you can be the first to hear about our future events including Dystonia Matters Live 2024.