About the group

This group is organised by Susan Hutchinson and meets in a local cafe. The group is fairly informal to enable members to get to know fellow local members and to discuss how the group can develop in order to provide support and raise awareness. The group aims to be a place to get together with others affected by dystonia and an opportunity to exchange ideas and share experiences.


Future meeting dates

All group meetings are postponed until further notice due to COVID-19, however we would like to invite you to take this opportunity to join our virtual groups on Facebook and to reach out to people near you that you may not have met through your normal group meetings. There are individual pages for each UK region and you can find the groups here.


Group contact

Group Contact Name: Susan Hutchinson
Group Contact Number: 0845 899 1051
Group Contact Email: [email protected]

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only.