About the group

This group meets every 3 months for lunch at the Toby Carvery in Newcastle upon Tyne. The support group has been established for around 8 years but many of the members have known each other for longer. Many of them met whilst attending hospital for treatment of their dystonia. The group has been growing as more people are being diagnosed. Great friendships have grown from the support group and many keep in touch daily. Members travel from Carlisle, Northumberland, Hexham, Gateshead, North Tyneside, Dubai, and America. The group also put leaflets in the clinics at Walkerpark Hospital and the outreach clinics. Raising awareness of dystonia is important to them and so is fundraising but their main concern as a group is supporting and helping people who have dystonia now.

Future meeting dates

Click here for upcoming meetings.

Group Contact

Group Contact Name: Pauline Dawson (phone) and Graham Huntley (email)
Group Contact Number: 0845 899 1050
Group Contact Email: [email protected]

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 0845 458 6322 (Calls cost 3p per minute plus your phone company's access charge.) or [email protected]