About the group

This group meets every 3 months for lunch at the Toby Carvery in Newcastle upon Tyne.

The support group has been established for around 8 years but many of the members have known each other for longer. Many of them met whilst attending hospital for treatment of their dystonia. The group has been growing as more people are being diagnosed. Great friendships have grown from the support group and many keep in touch daily.

Members travel from Carlisle, Northumberland, Hexham, Gateshead, North Tyneside, Dubai, and America. The group also put leaflets in the clinics at Walkergate Park Hospital and the outreach clinics. Raising awareness of dystonia is important to them and so is fundraising but their main concern as a group is supporting and helping people who have dystonia now.

Future meeting dates

To be determined.

Group contact

Group Contact Name: Graham Huntley
Group Contact Number: 020 7793 3651
Group Contact Email: [email protected]

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only.