About the group

This group was set up in 1988 and meets to give members an opportunity to have a coffee and chat & swap helpful tips and remedies, with occasional speakers and demonstrations. Refreshments are available. The group meets 7/8 times a year for regular meetings and for other events and activities throughout the year. They meet in a number of locations – including hotels, cafes and restaurants. They meet for meals, drinks and social gatherings. There are usually between 6 and 16 people that attend the meetings. The group has two volunteers that act as the treasurer, and Chairperson who organise and run the group meetings. Transport can be arranged if needed by volunteers.

Future meeting dates

Click here to see when the group is next meeting.

Group Contact

Group Contact Name: Carolann Curley
Group Contact Number: 0845 899 7123
Group Contact Email: [email protected]

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 020 7793 3650 (Calls cost 3p per minute plus your phone company's access charge.) or [email protected]