About the group

The Kent Dystonia UK Support Group was started in 1988 and meets to give members an opportunity to have a coffee and chat, with occasional speakers.

Meetings are semi-formal but allow plenty of time for discussion. A small buffet is offered for refreshments.

The group meets 4 – 5 times a year for regular meetings and meets for other events and activities. The group meets in church or village halls in locations across Kent to give all members the opportunity to join a meeting local to them at least once a year. The group usually has between 6 and 20 people attending the meetings.

The group does meet for other events and activities including in December for a Christmas lunch, fundraising and awareness raising.

They have 3 regular volunteers that act as the treasurer, coordinator and secretary, who organise and run the group meetings. All those who attend meetings help with the jobs that need to be done at meetings (e.g. venue booking, raffle, refreshments and chairs). The cost of running the group is met from donations, raffles, fundraising and the general generosity of members.

Future meeting dates

All group meetings are postponed until further notice due to COVID-19, however we would like to invite you to take this opportunity to join our virtual groups on Facebook and to reach out to people near you that you may not have met through your normal group meetings. There are individual pages for each UK region and you can find the groups here.

Group contact

Group Contact Name: Dave Ward (Coordinator)
Group Contact Number: 0845 899 7122
Group Contact Name: Yvonne Wilson / Kenzie Wilson-North (Secretary)
Group Contact Number: 0845 899 7102
Group Contact Email: [email protected]

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only.