About the group

This group was set up sometime in the 1990’s and meets to give members an opportunity to have a coffee and talk about their problems around dystonia, find out information and help each other. Refreshments are provided by a member.

The group meets 3 times a year for regular meetings. They meet at The Brain Charity in central Liverpool near Lime St Station. The Brain Charity also have a coffee morning on the first Monday of the month, Margie (the group coordinator) can meet members there for a chat if they phone on the 0845 number to arrange this.

This group have a volunteer who organises and runs the group meetings. There are additional helpers who help with refreshments and chairs.

The group usually has between 8 and 16 people that attend the meetings.

Future meeting dates

All group meetings are postponed until further notice due to COVID-19, however we would like to invite you to take this opportunity to join our virtual groups on Facebook and to reach out to people near you that you may not have met through your normal group meetings. There are individual pages for each UK region and you can find the groups here.

Group contact

Group Contact Name: Margie Hughes
Group Contact Number: 0845 899 7126
Group Contact Email: [email protected]

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only.