Penny has been a trustee since 2007, having originally joined Dystonia UK in 1998 when her son was diagnosed with generalised dystonia aged seven. Penny continues to have a particular interest in the impact of dystonia on young people and their families.

Penny lives in Kennington, south London. After a career as Head of Exhibitions at the Imperial War Museum, she is now a freelance museum consultant and writer, working for museums and journals in the UK and abroad. Penny also does voluntary work in the local community.

Penny is a public reviewer for the NHS’s National Institute for Health Research and sits on the research panel of the National Osteoporosis Society. She serves as a churchwarden and secretary of the parochial church council of St Olave’s church in the City of London.

In her spare time Penny enjoys cycling, history and travel. Penny loves gardening, particularly guerrilla gardening in the local area where she delights in transforming unloved spaces into colourful green oases.