Penny has been a trustee since 2007, having originally joined Dystonia UK in 1998 when her son was diagnosed with generalised dystonia aged seven. She continues to have a particular interest in the impact of dystonia on young people and their families.

Penny lives in Kennington, south London. After a career as with a national museum in London, she became a consultant and writer, working for museums and journals in the UK and abroad before retirement.

She is a public reviewer for the NHS’s National Institute for Health Research. She serves on the parochial church council and as churchwarden of St Olave’s church in the City of London.

In her spare time Penny enjoys cycling, history and travel. She loves gardening, particularly guerrilla gardening where she delights in transforming unloved spaces into colourful green oases.