Dystonia Matters Digital

Campaigning for Change

Friday 25th September 2020, morning session

One of our roles as a national organisation is to magnify the voice of dystonia patients and to raise awareness. Much of our work in this area is facilitated by Neurological Alliances from across the UK. Policy experts will be sharing their thoughts on neurology care and how we represent the community to continue pushing for more awareness and change at a governmental level.

Main speaker:

• Georgina Carr, Chief Executive of Neurological Alliance England

Panellists:

• Tanith Muller, The Neurological Alliance of Scotland
• David Galloway, Northern Ireland Neurological Charities Alliance
• Rebecca Brown, Welsh Neurological Alliance

Mental Health Matters

Friday 25th September 2020, afternoon session

It has long been suggested that dystonia is “all in your head” and while we know that not to be true, it is a fact that any long term chronic condition can have an effect on your mental health and we are inviting specialists in the field to come and have an in depth conversation about how you can look after your mental health, especially in these incredibly stressful times.

Main speaker:

• Professor Emeritus Marjan Jahanshahi, UCL Institute of Neurology

Panellists:

• Mandy, patient speaker
• Nick, patient speaker

The Future of Neurology

Saturday 26th September 2020, morning session

The future is always uncertain but following the events of the last few months it seems even more so. We’re asking leading clinicians their thoughts on the future of neurology. Clinicians from across the country will be sharing general updates on the NHS, digital innovations such as telemedicine and how their trusts have been impacted.

Main speakers and panellists:

• Dr Peter Moore and Dr Richard Ellis, The Walton Centre
• Dr Eoin Mulroy and Professor Tom Warner, UCL Institute of Neurology
• Dr Jean-Pierre Lin, Evelina London Children's Hospital
• Dr Kathryn Peall, University Hospital of Wales

Know Your Rights

Saturday 26th September 2020, afternoon session

In partnership with Disability Rights UK we will be sharing advice on a broad range of topics, including the PIP process, your employee rights, and how to navigate the educational system. We know how stressful it can be having to deal with these situations and this session will give you practical tools and tips to help guide you through what can be a difficult process.

Main speaker:

• Michael Paul, Disability Rights UK

Panellists:

• Gemma Stevenson, Sky Sports journalist
• Tully Kearney, World Championship Gold Medallist and Paralympian