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  • sbs-reach-out-reach-all
  1. Support us
  2. Campaigns
  3. Reach Out, Reach All

Reach Out, Reach All

The 'Reach Out, Reach All' campaign aims to bring the dystonia community together, through film, animation, podcasts and webinars.

Dystonia can be an isolating condition. It can be scary not knowing what the diagnosis means, not only to your life but also how it might affect your friends and family. While the community is large, it is also regionally diverse and this can lead to people feeling unsure and alone.

There are so many milestones in life which we take for granted, but which can cause high anxiety and stress for a person with dystonia, which only exacerbates the condition. As a charity, we want to bring real life stories of these milestones being navigated by people with the condition to give hope and practical tips to help. We are looking to combat the social isolation that is so much a part of the condition.

When we first launched the campaign in November 2019, in partnership with the Aviva Community Fund, we were overwhelmed with the positive response and enthusiasm from within the dystonia community.

With the money we raised from this appeal, we started creating the content that we know our supporters need.

This will not only give people with dystonia a voice but also the opportunity to see people with the condition and learn how they navigated their journey.

We launched the first of our webinars in response to the COVID-19 pandemic which halted filming on the short films. These webinars reached over 10,000 people and were invaluable to the dystonia community at a time of worldwide uncertainty. 

Donate to Reach Out, Reach All today

Donate to Reach Out, Reach All today

Your donation will change the lives of families who often feel alone and forgotten. Read more

Published: 25th June, 2020

Author: Bernie McMahon

Dystonia Animated

Dystonia Animated

Dystonia Animated is a series of short animations, as part of our Reach Out, Reach All campaign. They focus on “What is dystonia?” in children and how the diagnosis affects their lives. Read more

Published: 30th March, 2021

Updated: 29th April, 2022

Author: Bernie McMahon

Dystonia Matters Podcast

Dystonia Matters Podcast

The Dystonia Matters Podcast! Sharing personal stories and talking to members of the dystonia community. Read more

Published: 29th January, 2021

Updated: 29th April, 2022

Author: Dayna Ferdinandi

Dystonia Matters Webinars

Dystonia Matters Webinars

Reach Out, Reach All Webinars featuring experts in neurological movement disorders. Read more

Published: 3rd February, 2021

Updated: 11th April, 2022

Author: Bernie McMahon

Gemma tells us why

Our Ambassador, Gemma Louise Stevenson, tell us why the 'Reach Out, Reach All' campaign is so important. Read more

Published: 25th June, 2020

Updated: 22nd April, 2021

Author: Bernie McMahon

Lockdown Unlocked

Lockdown Unlocked

Gemma-Louise Stevenson, Tully Kearney and Tegan Vincent-Cooke discuss a variety of topics as part of our Lockdown Unlocked series. Read more

Published: 15th October, 2020

Updated: 27th October, 2020

Author: Bernie McMahon

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Showing 10 of 6

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    #BackThe1in6 - My Neuro Survey update

    08/06/2022 | We are calling on UK governments to back the 1 in 6 and establish a Neuro Taskforce

  • RideLondon 2022

    RideLondon 2022

    08/06/2022 | On Sunday 29th May, 11 fabulous cyclists from #TeamDystoniaUK took on the prestigious RideLondon.

  • Keswick to Barrow sponsored walk

    Keswick to Barrow sponsored walk

    13/05/2022 | On Saturday 7th May five amazing teams took on the super challenging K2B and C2B sponsored walk, completing an incredible 40 and 20 miles!

  • Dystonia Matters Live 2023

    Dystonia Matters Live 2023

    Dystonia UK's annual conference.

Most read

  • What is dystonia?

    What is dystonia?

    Dystonia is a neurological movement disorder that is estimated to affect at least 100,000 people in the UK.

  • What are the symptoms?

  • What causes dystonia?

    What causes dystonia?

    The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.

  • What are the common treatments?

  • What are the symptoms?

  • What are the causes?

  • Who does it affect?

  • What are the symptoms?

  • How will it affect my life?

  • What are the common treatments?

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Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)


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