Gemma tells us why

Our Ambassador Gemma Louise Stevenson tell us why the 'Reach Out, Reach All' campaign is so important.

Latest

My Neuro Survey 2024 is open!

22/07/24 | The 2024 My Neuro Survey - the largest patient experience survey of people living with neurological conditions is now live!
My Neuro Survey

For anyone with dystonia in England, Scotland, Wales, Northern Ireland or the Republic of Ireland. Takes 20 minutes.
Dystonia Matters Digital: For Kids, Carers & Families

Our digital conference for children and families held over two days, the 19th and 20th of March 2021.
Awareness Raising Guide

An Awareness Raising Guide to support everyone from or in support of our community on their journey of raising awareness that Dystonia Matters.

Dystonia Animated

Dystonia Animated is a series of short animations, as part of our Reach Out, Reach All campaign. They focus on “What is dystonia?” in children and how the diagnosis affects their lives.
Reach Out, Reach All Webinars

Reach Out, Reach All Webinars featuring experts in neurological movement disorders.
Dystonia Matters Podcast

The Dystonia Matters Podcast! Sharing personal stories and talking to members of the dystonia community.
Lockdown Unlocked

Gemma-Louise Stevenson, Tully Kearney and Tegan Vincent-Cooke discuss a variety of topics as part of our Lockdown Unlocked series.
Donate to Reach Out, Reach All today

Your donation will change the lives of families who often feel alone and forgotten.

What is dystonia?

Dystonia is a neurological movement disorder that is estimated to affect at least 100,000 people in the UK. Learn about it here and request an information booklet.
What are the symptoms?
What causes dystonia?

The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.
What are the symptoms?
What are the symptoms?
What are the common treatments?
What are the common treatments?
What are the causes?
What are the causes?
Who does it affect?