If you think you may have dystonia, it is always best to discuss this with your GP.
If necessary, they will refer you to a neurologist specialising in movement disorders, an ophthalmologist, or ear, nose, and throat specialist depending on your suspected type of dystonia.
Only a medical professional can confirm confirm if you have dystonia. If you think you may have dystonia it is always best to discuss these concerns with your GP.
The team at Dystonia UK are not medically qualified to diagnose dystonia.
It can sometimes take a long time to get a diagnosis as the symptoms of dystonia can be similar to those of other conditions, and it is often a question of ruling these out first before arriving at a diagnosis.
To help you can:
You (or someone on your behalf) can search online using the following suggested search terms:
Once you have found some possibilities, we recommend calling them to find out more about the practitioner's specific knowledge of dystonia, and to check the cost of an initial consultation, tests and follow ups.