I think I have dystonia, but I am struggling to get a diagnosis, what can I do?

It can sometimes take a long time to get a diagnosis as the symptoms of dystonia can be similar to those of other conditions, and it is often a question of ruling these out first before arriving at a diagnosis.

To help you can:

• show your GP the pages from our website that feature the same symptoms you are experiencing

• ask your GP if you can be referred to a hospital that diagnoses and treats dystonia

• ask for a second opinion at your GP practice

• if possible, contact a private practitioner specialising in movement disorders and enquire whether they will see you