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  • dystonia-matters-podcast-season-two
  1. Support us
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  5. Dystonia Matters Podcast Season Two

Dystonia Matters Podcast Season Two

We're delighted to launch season two of our popular ‘Dystonia Matters Podcast’ during 'Dystonia Awareness Month' 2022.

Throughout this series, we'll be sharing even more of your stories as we chat to members of the dystonia community about why dystonia matters.

Dystonia Matters Podcast logo

Our podcasts are all about sharing your stories and hearing from the community. We know how important it is to hear other people’s stories and know you are not alone. Podcasts allow us to literally share your voices.

One supporter said, “I've listened to the podcast... and cried. It is wonderful to realise you're not alone and agree that it would be lovely to get to the point where people don't say 'What IS dystonia?'"

Check out the released episodes of below. Subscribe now on Spotify or Apple Podcasts and all major podcasting platforms.

Dystonia Matters and so does your voice, so if you would like to share your story, please pop us an email and a member of the team will contact you.

Donate £1 to support the dystonia community today


Donate £1 today to support the work of Dystonia UK. Your donations will make such a difference including giving our community the opportunity to share their stories on our Dystonia Matters podcast! We aim to raise £100,000, one pound for every person in the UK thought to be affected by dystonia. 

Episode 1: Ella's story

Episode 1: Ella's story

For the launch of season two of the podcast we are joined by Ella to share her story. Read more

Published: 2nd September, 2022

Author: Bernie McMahon

Episode 2: Joe's story

Episode 2: Joe's story

In this episode of the Dystonia Matters Podcast we are joined by Joe to share his story. Read more

Published: 9th September, 2022

Author: Bernie McMahon

Episode 3: Danni's story

Episode 3: Danni's story

In this episode of the Dystonia Matters Podcast we are joined by Danni to share her story. Read more

Published: 16th September, 2022

Author: Bernie McMahon

Episode 4: Bailey's story, as told by Ryan & Gemma

Episode 4: Bailey's story, as told by Ryan & Gemma

In this episode of the Dystonia Matters Podcast we are joined by Ryan and Gemma to share their son Bailey's story. Read more

Published: 21st September, 2022

Updated: 20th February, 2023

Author: Bernie McMahon

Episode 5: Kimberley's story

Episode 5: Kimberley's story

Dystonia Superstar Award winner, Kimberley, stopped by the podcast to chat to Dayna about her dystonia story. Read more

Published: 7th October, 2022

Author: Bernie McMahon

Episode 6: Luca's story

Episode 6: Luca's story

Luca stopped by the podcast to chat to Dayna about his dystonia story. Read more

Published: 16th December, 2022

Author: Bernie McMahon

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  • Thank you for an amazing Dystonia Awareness Month 2023!

    Thank you for an amazing Dystonia Awareness Month 2023!

Most read

  • What is dystonia?

    What is dystonia?

    Dystonia is a neurological movement disorder that is estimated to affect at least 100,000 people in the UK. Learn about it here and request an information booklet.

  • What are the symptoms?

  • What causes dystonia?

    What causes dystonia?

    The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.

  • What are the symptoms?

  • What are the symptoms?

  • What are the common treatments?

  • What are the common treatments?

  • What are the causes?

  • What are the causes?

  • Who does it affect?

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Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)


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