Skip over main navigation
  • Log in
  • Basket: (0 items)
Dystonia UK
  • Twitter
  • Facebook
  • Instagram
  • YouTube
Membership Donate
Menu
  • About us
    • Who we are
    • The team
    • Annual reports and accounts
    • News
  • About dystonia
    • What is dystonia?
    • What causes dystonia?
    • Types of dystonia
  • Help and support
    • How we support you
    • Diagnosis and treatment
    • Just diagnosed
    • Your local support group
    • Our conferences
  • Membership
    • Why become a member
    • Join or renew your membership
  • Support us
    • Donate
    • Fundraise for us
    • Other ways to give
    • Partner with us
    • Volunteer for us
    • Campaigns
    • Your stories
    • Your voice heard
    • Shop
  • Admin
    • Log in
  • Basket: (0 items)
  • dystonia-matters-podcast
  1. Support us
  2. Campaigns
  3. Reach Out, Reach All
  4. Dystonia Matters Podcast

Dystonia Matters Podcast

The Dystonia Matters Podcast! Sharing personal stories and talking to members of the dystonia community.

Our podcasts are all about sharing your stories and hearing from the community. We know how important it is to hear other people’s stories and know you are not alone. Podcasts allow us to literally share your voices.

One supporter said, “I've listened to the podcast... and cried. It is wonderful to realise you're not alone and agree that it would be lovely to get to the point where people don't say 'What IS dystonia?'"

Check out released episodes below. Subscribe now on Spotify or Apple Podcasts and all major podcasting platforms.

Dystonia Matters and so does your voice, so if you would like to share your story, please pop us an email and a member of the team will contact you.

Episode 1: Faces of the dystonia community

Episode 1: Faces of the dystonia community

In this first episode of the Dystonia Matters podcast, you'll meet three members of the dystonia community, Louise, Katie and Andy. Read more

Published: 31st March, 2021

Author: Bernie McMahon

Episode 2: Working with dystonia

Episode 2: Working with dystonia

For the second episode of the Dystonia Matters podcast, we're sharing lifestyle advice from Dystonia UK Ambassador, Gemma Stevenson and Nick Morgan. Read more

Published: 31st March, 2021

Author: Bernie McMahon

Episode 3: Parents and carers

Episode 3: Parents and carers

Parents and carers are an essential part of the dystonia community, so in this episode we're introducing you to three phenomenal parents and their journeys helping their kids navigate their conditions. Read more

Published: 31st March, 2021

Author: Bernie McMahon

Back to top

Showing 10 of 3

Latest

  • How can you shape the future of neurological care?

    How can you shape the future of neurological care?

    06/04/2021 | People with dystonia have shared concerns about receiving support, healthcare and mental health services during the pandemic. A new app is gathering data to shape the future of neurological care.

  • Episode 3: Parents and carers

    Episode 3: Parents and carers

    Parents and carers are an essential part of the dystonia community, so in this episode we're introducing you to three phenomenal parents and their journeys helping their kids navigate their conditions.

  • Episode 2: Working with dystonia

    Episode 2: Working with dystonia

    For the second episode of the Dystonia Matters podcast, we're sharing lifestyle advice from Dystonia UK Ambassador, Gemma Stevenson and Nick Morgan.

  • Episode 1: Faces of the dystonia community

    Episode 1: Faces of the dystonia community

    In this first episode of the Dystonia Matters podcast, you'll meet three members of the dystonia community, Louise, Katie and Andy.

Most read

  • Make a donation

  • Callum's story

    Callum's story

    Callum's story, as told by his dad Neil. Callum is a young man with Down Syndrome who has neck dystonia (cervical dystonia).

  • Membership

  • What is dystonia?

    What is dystonia?

    Dystonia is a neurological movement disorder that is estimated to affect at least 100,000 people in the UK.

  • What are the symptoms?

  • What are the causes?

  • Research update

  • What are the common treatments?

  • What are the symptoms?

  • Who does it affect?

Tag cloud

Airdrie DS Group Cambridgeshire DS Group Edinburgh DS Group Hertfordshire DS Group Kent DS Group Lancashire & Fylde DS Group Liverpool DS Group London and Surrey DS Group Manchester DS Group North East DS Group North Shropshire Borders DS Group Northern Ireland DS Group Oxford DS Group Torbay & Exeter DS Group West Midlands DS Group West Sussex DS Group

Subscribe to receive regular emails from Dystonia UK

* indicates required
  • Sitemap
  • Terms & Conditions
  • Privacy Policy
  • Update your communication preferences


  • Twitter
  • Facebook
  • Instagram
  • YouTube

Registered office

89 Albert Embankment
London SE1 7TP
[email protected]
020 7793 3651

Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)


Help Dystonia UK

Donate Volunteer Fundraise