The Dystonia Matters Podcast! Sharing personal stories and talking to members of the dystonia community.
Our podcasts are all about sharing your stories and hearing from the community. We know how important it is to hear other people’s stories and know you are not alone. Podcasts allow us to literally share your voices.
One supporter said, “I've listened to the podcast... and cried. It is wonderful to realise you're not alone and agree that it would be lovely to get to the point where people don't say 'What IS dystonia?'"
Check out released episodes below. Subscribe now on Spotify or Apple Podcasts and all major podcasting platforms.
Dystonia Matters and so does your voice, so if you would like to share your story, please pop us an email and a member of the team will contact you.
In this first episode of the Dystonia Matters podcast, you'll meet three members of the dystonia community, Louise, Katie and Andy. Read more
For the second episode of the Dystonia Matters podcast, we're sharing lifestyle advice from Dystonia UK Ambassador, Gemma Stevenson and Nick Morgan. Read more
Parents and carers are an essential part of the dystonia community, so in this episode we're introducing you to three phenomenal parents and their journeys helping their kids navigate their conditions. Read more
In this episode we are joined by three of our amazing fundraising champions as they identify the dual purpose of fundraising and awareness raising. Read more