The Dystonia Matters Podcast! Sharing personal stories and talking to members of the dystonia community.
Our podcasts are all about sharing your stories and hearing from the community. We know how important it is to hear other people’s stories and know you are not alone. Podcasts allow us to literally share your voices.
One supporter said, “I've listened to the podcast... and cried. It is wonderful to realise you're not alone and agree that it would be lovely to get to the point where people don't say 'What IS dystonia?'"
Check out released episodes below. Subscribe now on Spotify or Apple Podcasts and all major podcasting platforms.
Dystonia Matters and so does your voice, so if you would like to share your story, please pop us an email and a member of the team will contact you.
Donate £1 today to support the work of Dystonia UK. Your donations will make such a difference including giving our community the opportunity to share their stories on our Dystonia Matters podcast! We aim to raise £100,000, one pound for every person in the UK thought to be affected by dystonia.
Season one of our podcast was a huge success with over a thousand listeners tuning in to hear stories from people across the dystonia community. Six episodes covering a range of topics from work to mental health. Read more
We're delighted to launch season two of our popular ‘Dystonia Matters Podcast’ during 'Dystonia Awareness Month' 2022. Throughout this series, we'll be sharing even more of your stories as we chat to members of the dystonia community about why dystonia matters. Read more
The popular 'Dystonia Matters Podcast' continues in Season Three with even more stories from the dystonia community. Read more