The Dystonia Matters Podcast! Sharing personal stories and talking to members of the dystonia community.
Our podcasts are all about sharing your stories and hearing from the community. We know how important it is to hear other people’s stories and know you are not alone. Podcasts allow us to literally share your voices.
One supporter said, “I've listened to the podcast... and cried. It is wonderful to realise you're not alone and agree that it would be lovely to get to the point where people don't say 'What IS dystonia?'"
Check out released episodes below. Subscribe now on Spotify or Apple Podcasts and all major podcasting platforms.
Dystonia Matters and so does your voice, so if you would like to share your story, please pop us an email and a member of the team will contact you.
Donate £1 today to support the work of Dystonia UK. Your donations will make such a difference including giving our community the opportunity to share their stories on our Dystonia Matters podcast! We aim to raise £100,000, one pound for every person in the UK thought to be affected by dystonia.
In this first episode of the Dystonia Matters podcast, you'll meet three members of the dystonia community, Louise, Katie and Andy. Read more
For the second episode of the Dystonia Matters podcast, we're sharing lifestyle advice from Dystonia UK Ambassador, Gemma Stevenson and Nick Morgan. Read more
Parents and carers are an essential part of the dystonia community, so in this episode we're introducing you to three phenomenal parents and their journeys helping their kids navigate their conditions. Read more
In this episode we are joined by three of our amazing fundraising champions as they identify the dual purpose of fundraising and awareness raising. Read more
In this episode we are joined by four fantastic guests who in very individual ways have been raising awareness of dystonia. Read more
In this episode we are joined by Lucy and Dylan to discuss their mental health and how it feeds into their dystonia and how in turn dystonia affects their mental health. Read more