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  • dystonia-awareness-month
  1. Support us
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  3. Dystonia Awareness Month

Dystonia Awareness Month


Dystonia Awareness Month is back and bigger than ever!

Throughout September 2022, once again Dystonia UK and the dystonia community will be coming together to help raise awareness of dystonia - a neurological movement disorder thought to affect around 100,000 people in the UK.

This year, we have returned with our fabulous festival vibe and will be hosting a variety of events across the UK from landmark light ups, webinars, podcasts, and picnics. We cannot wait to share our plans with you!

Please tag us @DystoniaUK and #DystoniaAwarenessMonth on all the social media platforms you use and/or send your photos to [email protected] for us to use and share.

If you haven’t got your festival attire yet, be sure to check out our merchandise range in the shop so you can show it off in your photos.

We cannot wait to see how you get involved!

Dystonia Awareness Month 2021

Dystonia Awareness Month 2021

Thank you for an amazing Dystonia Awareness Month 2021! Read more

Published: 28th July, 2022

Updated: 8th August, 2022

Author: Bernie McMahon

Dystonia Awareness Month 2022 - Get involved!

Dystonia Awareness Month 2022 - Get involved!

If you’re thinking about being involved in raising awareness of dystonia this September, there are plenty of ways you can help. Read more

Published: 26th July, 2022

Updated: 8th August, 2022

Author: Bernie McMahon

Dystonia Awareness Month 2022 – What’s happening?

Dystonia Awareness Month 2022 – What’s happening?

With more activities than ever lined up for 2022, there are plenty of awareness raising events across the UK for you to join in with as well as our animation, webinars, and podcasts to support those living with dystonia. Read more

Published: 26th July, 2022

Updated: 8th August, 2022

Author: Bernie McMahon

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Showing 10 of 3

Latest

  • Inflatable 5K

    Inflatable 5K

    Event Type: 5K obstacle run. Date: Saturday 3rd September 2022. Location: St Albans. Registration Fee: Get in touch with our fundraising team.

  • Inflatable 5K

    Inflatable 5K

    Event Type: 5K obstacle run. Date: Saturday 3rd September 2022. Location: St Albans. Registration Fee: Get in touch with our fundraising team.

  • Neurorehabilitation Patient & Carer Group

    Neurorehabilitation Patient & Carer Group

    Have your voice heard on neuro rehab services. For people living with, or caring for someone with, a neurological condition (other than stroke) in Greater Manchester.

  • Wales Coproduction Group

    Wales Coproduction Group

    Share your views on the route to diagnosis. For people living in Wales who have been diagnosed with dystonia within the last 2 years, or are currently under investigation for dystonia.

Most read

  • What is dystonia?

    What is dystonia?

    Dystonia is a neurological movement disorder that is estimated to affect at least 100,000 people in the UK.

  • What are the symptoms?

  • What causes dystonia?

    What causes dystonia?

    The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.

  • What are the common treatments?

  • What are the symptoms?

  • What are the causes?

  • What are the symptoms?

  • Who does it affect?

  • What are the common treatments?

  • How will it affect my life?

Tag cloud

Airdrie DS Group Cambridgeshire DS Group Edinburgh DS Group Hertfordshire DS Group Kent DS Group Lancashire & Fylde DS Group Liverpool DS Group London and Surrey DS Group Manchester DS Group North East DS Group North Shropshire Borders DS Group Northern Ireland DS Group Oxford DS Group Torbay & Exeter DS Group West Midlands DS Group West Sussex DS Group

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Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)


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