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  • Dystonia Awareness Month
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  3. Dystonia Awareness Month

Dystonia Awareness Month


Every September, Dystonia UK and the dystonia community come together to help raise awareness of dystonia - a neurological movement disorder thought to affect around 100,000 people in the UK.

Please tag us @DystoniaUK and #DystoniaAwarenessMonth on all the social media platforms you use and/or send your photos to [email protected] for us to use and share.

If you haven’t got your festival attire yet, be sure to check out our merchandise range in the shop so you can show it off in your photos.

We cannot wait to see how you get involved in 2026!

Awareness Raising Guide

Awareness Raising Guide

An Awareness Raising Guide to support everyone from or in support of our community on their journey of raising awareness that Dystonia Matters. Read more

Published: 1st August, 2024

Updated: 3rd March, 2025

Author: Sophia Michael

Dystonia Awareness Month - Get involved!

Dystonia Awareness Month - Get involved!

If you’re thinking about being involved in raising awareness of dystonia in September, there are plenty of ways you can help. Read more

Published: 12th October, 2022

Updated: 19th October, 2023

Author: Bernie McMahon

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Latest

  • A warm welcome to our new CEO

    A warm welcome to our new CEO

    22/05/2026 | The Board of Trustees is pleased to announce the appointment of our new Chief Executive Officer, Alex Feis-Bryce.

  • Alex Feis-Bryce

    Alex Feis-Bryce

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    Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500.

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    Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500.

Most read

  • What is dystonia?

    What is dystonia?

    Dystonia is a neurological condition that is estimated to affect at least 100,000 people in the UK. Learn more about it here.

  • What are the symptoms?

  • What causes dystonia?

    What causes dystonia?

    The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.

  • What are the symptoms?

  • What are the symptoms?

  • What are the common treatments?

  • What are the causes?

  • What are the common treatments?

  • What are the causes?

  • Who does it affect?

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020 7793 3651

Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)

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