22/05/2026 | The Board of Trustees is pleased to announce the appointment of our new Chief Executive Officer, Alex Feis-Bryce. Read more
01/08/2025 | Victoria Wareham, our Director of Operations and Development, shares how we’re growing and improving support networks for the dystonia community. Read more
25/06/2025 | Dystonia UK calls for urgent action as new survey shows people with dystonia are being left behind by the NHS Read more
21/08/2025 | Dystonia UK will be taking over Newcastle with a whole weekend of awareness month activities! Read more
23/06/2025 | Take part in a new research study exploring the use of a self-compassion app. Read more
02/05/2025 | The new UK Neuro Forum met for the first time in March 2025, hearing issues from across neurological communities including the dystonia community. Read more
24/04/2025 | In our first episode, we are joined by the brilliant Karen, a nurse, fitness instructor and advocate for dystonia awareness. Read more
27/03/2025 | Dystonia UK and Manchester Metropolitan University are looking for the final people to take part in an exciting study to improve outcomes for botulinum toxin injections. Read more
12/03/2025 | Dystonia UK partnered with Mediaplanet to raise awareness about dystonia. Read more
28/02/2025 | Celebrate amazing members of the dystonia community by nominating them for the 'Dystonia Superstar', 'Masked Hero' and 'Young Champion' Awards at The Dystonia UK Awards 2025. Read more
20/12/2024 | Our office is now closed until Monday 6th January 2025. Read more
15/12/2024 | Our Director of Fundraising and Communications, Dayna Ferdinandi, joined Ben Boulos and Sarah Campbell on BBC Breakfast to raise awareness about dystonia on a national level. Read more
03/12/2024 | Find out how Dystonia UK helps the community and donate this Giving Tuesday! Read more
29/11/2024 | A team in Manchester are collecting data to build a ground breaking tool that aims to improve the outcomes from botulinum toxin injections. Read more
11/10/2024 | Booking now open for the largest event for people living with dystonia in the UK! Read more
30/09/2024 | On Friday 27th September we hosted The Dystonia UK Awards 2024, celebrating our community and announcing your 2024 winners! Read more
11/09/2024 | A new survey from UCL Queen Square Institute of Neurology has been launched to capture the experience of those living with dystonia accessing NHS Physiotherapy Read more
22/07/24 | The 2024 My Neuro Survey - the largest patient experience survey of people living with neurological conditions is now live! Read more
04/06/2024 | Thank you to all our volunteers for making a difference! Read more
01/06/2024 | Voting is now open! Vote now for your 'Masked Hero', 'Dystonia Superstars', 'Young Champion', and 'Popular Podcast'. Read more
19/04/2024 | The 'Dystonia UK Awards' are back and bigger than ever! The awards shine a spotlight on our incredible community, giving you the opportunity to nominate and vote for your very own 'Dystonia Superstar', 'Masked Hero' and 'Young Champion'. Read more
28/02/24 | A project aiming to improving quality of life of children and young people with dystonia through the development of consensus standards of medication use. Read more
15/12/2023 | Our office will now be closed so we can enjoy a festive break, but we'll be back in full swing on Wednesday 3rd January 2024. Read more
15/12/2023 | Our Director of Fundraising and Communications, Dayna Ferdinandi, joined Ben Boulos from BBC Breakfast, to film a piece raising widespread awareness about dystonia. Read more
09/08/2023 | Dystonia UK was pleased to award seed funding in 2016 to Professor Ian Loram and his team at Manchester Metropolitan University for their research project. In this article, Prof Ian Loram explains the learnings and next steps for turning the proof of concept into a robust clinical tool. Read more
31/07/2023 | Voting is now open! Vote now for your 'Masked Hero', 'Dystonia Superstar, and 'Popular Podcast'. Read more