You might want to talk to someone who has experience and knows what it’s like to be diagnosed with dystonia. You can find others to talk to through one of our local support groups or online support groups.

You can also read more about loneliness and find advice on how to get help on the NHS website.

If you prefer to speak to someone on the phone, or would like to speak to someone regularly we recommend:

  • The Brain Charity
    A charity based in Liverpool that offers emotional support, practical help and social activities to anyone with a neurological condition and to their family, friends and carers. They also run a befriending service which you can enquire about by phoning 0151 298 2999.

  • Age UK
    The leading national charity for elderly people that provides help, information and advice. They also run a befriending service which has the possibility of setting up a regular call. Contact them 24 hours a day by phoning 0800 470 8090.