11/09/2024 | A new survey from UCL Queen Square Institute of Neurology has been launched to capture the experience of those living with dystonia in the UK accessing NHS Physiotherapy Read more
22/07/24 | The 2024 My Neuro Survey - the largest patient experience survey of people living with neurological conditions is now live! Read more
09/08/2023 | Dystonia UK was pleased to award seed funding in 2016 to Professor Ian Loram and his team at Manchester Metropolitan University for their research project. In this article, Prof Ian Loram explains the learnings and next steps for turning the proof of concept into a robust clinical tool. Read more
04/06/2024 | Thank you to all our volunteers for making a difference! Read more
01/06/2024 | Voting is now open! Vote now for your 'Masked Hero', 'Dystonia Superstars', 'Young Champion', and 'Popular Podcast'. Read more
19/04/2024 | The 'Dystonia UK Awards' are back and bigger than ever! The awards shine a spotlight on our incredible community, giving you the opportunity to nominate and vote for your very own 'Dystonia Superstar', 'Masked Hero' and 'Young Champion'. Read more
28/02/24 | A project aiming to improving quality of life of children and young people with dystonia through the development of consensus standards of medication use. Read more
15/12/2023 | Our office will now be closed so we can enjoy a festive break, but we'll be back in full swing on Wednesday 3rd January 2024. Read more
15/12/2023 | Our Director of Fundraising and Communications, Dayna Ferdinandi, joined Ben Boulos from BBC Breakfast, to film a piece raising widespread awareness about dystonia. Read more
31/07/2023 | Voting is now open! Vote now for your 'Masked Hero', 'Dystonia Superstar, and 'Popular Podcast'. Read more
11/07/2023 | Over 19,000 people affected by neurological conditions and 100 organisations back Neuro Taskforce petition. Read more
11/07/2023 | An upcoming study looking at how coping strategies are used and experienced by people with neck (cervical) dystonia. Read more
14/06/2023 | Join us for pizza & a pint or a prosecco as we celebrate the 40th anniversary of Dystonia UK with our fantastic community! Read more
08/06/2023 | As we plan for the future, we wanted to make sure your voice is heard. Take part in our survey! Read more
09/06/2023 | Following the amazing success of the inaugural ‘Dystonia UK Awards’ last year we are thrilled to celebrate members of our dystonia community once again in 2023! Nominations are now open for the ‘Masked Hero’ and ‘Dystonia Superstar’ awards. Read more
02/02/2023 | A new optimal clinical care pathway for adults with movement disorders has been published. Read more
21/05/2022 | Dystonia UK Trustee, Tim Gannicliffe, reports on the latest from Dystonia Europe’s 2022 conference Read more
03/01/2023 | Lancaster University doctoral student study on dystonia with opportunities to be involved. Read more
Our office will now be closed so we can enjoy the festive fun, but we'll be back in full swing on Tuesday 3rd January 2023. Read more
15/12/2022 | In memory of Adam Kalinowski, President of Dystonia Europe Read more
13/10/2022 | On Sunday 2nd October two amazing runners took on the world famous London Marathon raising an incredible £6087. Read more
08/06/2022 | We are calling on UK governments to back the 1 in 6 and establish a Neuro Taskforce Read more
08/06/2022 | On Sunday 29th May, 11 fabulous cyclists from #TeamDystoniaUK took on the prestigious RideLondon. Read more
26/07/2022 | The winners of the Dystonia UK Awards have been announced! Read more
13/05/2022 | On Saturday 7th May five amazing teams took on the super challenging K2B and C2B sponsored walk, completing an incredible 40 and 20 miles! Read more
07/05/2022 | Dystonia Matters Live 2022 has been postponed to the Summer of 2023 Read more