We use surveys and government consultations to collect important data that form key evidence in reports and other influencing work that we produce.
It is so important that the voice of those living with dystonia is represented in this work so we will often share these opportunities with our community.
If you are interested in supporting this work and making your voice heard, please take a moment to look at the surveys open to take part in below.
For parents and carers of children with dystonia. Takes 3-5 minutes. Read more
For disabled people and those close to them. Takes 20-30 minutes. Closes 13th February. Read more
For people living with dystonia or close to someone who does. Read more