We are immensely proud of all our volunteers across the UK and the work we do would not be possible without them. We welcome people from all backgrounds who are happy to give some time to volunteering.
"I thoroughly enjoy working as a volunteer at Dystonia UK because all the staff are brilliant people to work with and hugely knowledgeable. I also feel a great sense of pride when I have been able to offer support and answer people's questions about what dystonia is and how I and Dystonia UK can help them now and in the future. " - Nicholas Calder-Bundy, Dystonia UK volunteer
Visit our pages below on the areas you can help with to find out more.
To sign up as a volunteer simply email us at [email protected]. You can let us know if there is a role you’re more interested in or if you are happy to help with anything!
Take a look at our Fundraising and volunteering FAQs or email us.
We hold several fundraising, awareness raising and support events throughout the year and these take a team effort to run.
You might want to take part in an event to fundraise for us. There are so many ways to do this (and not all of them involve running a marathon!).
Our office in London is a hub of activity run by a small team. Our office helpers assist with the office administration in several areas including fundraising, data collection and member communications.
We know there is very little information on dystonia in treatment centres so we developed leaflets about the condition and the work we do to support people with dystonia that can be displayed in clinics. You could volunteer to help as an awareness ambassador by delivering these materials to your local clinic or treatment centre.
Our support groups were the start of our charity over 35 years ago and are still at the heart of what we do.
Where a research project may need a pool of volunteers with dystonia we will notify our Team Dystonia UK members.
Our Board of Trustees is made up of volunteers.