Working groups are a way of enabling the sharing of information and personal experiences between individuals to achieve solutions and influence decisions.
Joining a working group can be a great way to make sure the voice of those living with dystonia is represented.
We will share opportunities to join a working group with our community. If you are interested in supporting this work and making your voice heard, please take a moment to look at the groups currently seeking participants below.
Share your views on the route to diagnosis. For people living in Wales who have been diagnosed with dystonia within the last 2 years, or are currently under investigation for dystonia.