Working groups are a way of enabling the sharing of information and personal experiences between individuals to achieve solutions and influence decisions.
Joining a working group can be a great way to make sure the voice of those living with dystonia is represented.
We will share opportunities to join a working group with our community. If you are interested in supporting this work and making your voice heard, please take a moment to look at the groups currently seeking participants below.
Have your voice heard on neuro rehab services. For people living with, or caring for someone with, a neurological condition (other than stroke) in Greater Manchester.
Share your views on the route to diagnosis. For people living in Wales who have been diagnosed with dystonia within the last 2 years, or are currently under investigation for dystonia.