Young Champion Award

The 🏆 Young Champion Award 🏆 offers the perfect opportunity to celebrate individuals aged 16-25 who embody extraordinary qualities and deserve some recognition! Whether they are living life with dystonia, demonstrate exceptional support as a sibling or have achieved something you want everybody to know about, now is the moment to acknowledge how outstanding they are. Let's shine the spotlight on these remarkable individuals and give them the recognition they truly deserve!

Ashley “I would like to nominate my son Ashley for his incredible adaptability and bravery whilst navigating this condition. Ashley was born at 26 weeks and has battled from birth. Ashley was diagnosed with Global developmental and Tourette’s syndrome by the age of 9 and more recently chromosome 16 duplication. Over the past 2 years, Ashley’s battled with multifocal dystonia with many painful attacks throughout the day. He has the constant worry of a dystonic crisis but continues to handle this with bravery and determination.”

Luca “My young nephew is an inspiration. He was diagnosed as a very young child after numerous tests and investigations and our world was turned upside down when he was diagnosed. He underwent brain surgery and has frequent appointments in London. He is amazing and from being in a wheelchair now walks miles! He even did a podcast for the BBC and spoke at Dystonia Matters Live 2023. I am very proud of the young man he has become and the way he has faced the challenges thrown at him.”

Tajana “Living with dystonia herself, Tajana’s been on a mission, fundraising and raising awareness for the condition. As a podcast guest, she’s bravely shared her own experiences, shedding light on the challenges and triumphs of living with dystonia. Her commitment and passion for supporting the community run deep.”