Are you a registered charity?

Yes.

Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127).

Latest

Physiotherapy for Dystonia: A UK Patient Survey

For adults with specific types dystonia in the UK. Takes 20 minutes.
Physiotherapy for Dystonia: A UK Patient Survey

11/09/2024 | A new survey from UCL Queen Square Institute of Neurology has been launched to capture the experience of those living with dystonia in the UK accessing NHS Physiotherapy
My Neuro Survey 2024 is open!

22/07/24 | The 2024 My Neuro Survey - the largest patient experience survey of people living with neurological conditions is now live!
My Neuro Survey

For anyone with dystonia in England, Scotland, Wales, Northern Ireland or the Republic of Ireland. Takes 20 minutes.

What is dystonia?

Dystonia is a neurological movement disorder that is estimated to affect at least 100,000 people in the UK. Learn about it here and request an information booklet.
What are the symptoms?
What causes dystonia?

The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.
What are the symptoms?
What are the symptoms?
What are the common treatments?
What are the common treatments?
What are the causes?
What are the causes?
Who does it affect?