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  1. Support us
  2. Volunteer for us

Volunteer for us

We are immensely proud of all our volunteers across the UK and the work we do would not be possible without them. We welcome people from all backgrounds who are happy to give some time to volunteering.

Why should you volunteer to be part of Team Dystonia UK?

It’s simple:

  • You can change lives
  • You can meet new people
  • You can learn new skills
  • You can make a difference
"I thoroughly enjoy working as a volunteer at Dystonia UK because all the staff are brilliant people to work with and hugely knowledgeable. I also feel a great sense of pride when I have been able to offer support and answer people's questions about what dystonia is and how I and Dystonia UK can help them now and in the future. " - Nicholas Calder-Bundy, Dystonia UK volunteer

What volunteer roles are there in Team Dystonia UK and how do I sign up? 

Visit our pages below on the areas you can help with to find out more.

To sign up as a volunteer simply email us at [email protected]. You can let us know if there is a role you’re more interested in or if you are happy to help with anything!

Got any questions? 

Take a look at our Fundraising and volunteering FAQs or email us.

Events

Events

We hold several fundraising, awareness raising and support events throughout the year and these take a team effort to run. Read more

Published: 21st May, 2020

Updated: 26th June, 2020

Author: Bernie McMahon

Fundraising

Fundraising

You might want to take part in an event to fundraise for us. There are so many ways to do this (and not all of them involve running a marathon!). Read more

Published: 21st May, 2020

Updated: 25th June, 2020

Author: Bernie McMahon

Office

Office

Our office in London is a hub of activity run by a small team. Our office helpers assist with the office administration in several areas including fundraising, data collection and member communications. Read more

Published: 21st May, 2020

Updated: 26th June, 2020

Author: Bernie McMahon

Raising awareness

Raising awareness

We know there is very little information on dystonia in treatment centres so we developed leaflets about the condition and the work we do to support people with dystonia that can be displayed in clinics. You could volunteer to help as an awareness ambassador by delivering these materials to your local clinic or treatment centre. Read more

Published: 21st May, 2020

Updated: 26th June, 2020

Author: Bernie McMahon

Research

Research

Where a research project may need a pool of volunteers with dystonia we will notify our Team Dystonia UK members. Read more

Published: 21st May, 2020

Updated: 22nd June, 2020

Author: Bernie McMahon

Support groups

Support groups

Our support groups were the start of our charity over 35 years ago and are still at the heart of what we do. Read more

Published: 21st May, 2020

Updated: 26th June, 2020

Author: Bernie McMahon

Trustee

Trustee

Our Board of Trustees is made up of volunteers. Read more

Published: 21st May, 2020

Updated: 22nd June, 2020

Author: Bernie McMahon

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Showing 10 of 7

Latest

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    #BackThe1in6 - My Neuro Survey update

    08/06/2022 | We are calling on UK governments to back the 1 in 6 and establish a Neuro Taskforce

  • RideLondon 2022

    RideLondon 2022

    08/06/2022 | On Sunday 29th May, 11 fabulous cyclists from #TeamDystoniaUK took on the prestigious RideLondon.

  • Keswick to Barrow sponsored walk

    Keswick to Barrow sponsored walk

    13/05/2022 | On Saturday 7th May five amazing teams took on the super challenging K2B and C2B sponsored walk, completing an incredible 40 and 20 miles!

  • Dystonia Matters Live 2023

    Dystonia Matters Live 2023

    Dystonia UK's annual conference.

Most read

  • What is dystonia?

    What is dystonia?

    Dystonia is a neurological movement disorder that is estimated to affect at least 100,000 people in the UK.

  • What are the symptoms?

  • What causes dystonia?

    What causes dystonia?

    The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.

  • What are the common treatments?

  • What are the symptoms?

  • What are the causes?

  • Who does it affect?

  • What are the symptoms?

  • How will it affect my life?

  • What are the common treatments?

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Registered office

89 Albert Embankment
London SE1 7TP
[email protected]
020 7793 3651

Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)


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