If you have a question that isn't on our FAQs page or want to get in touch with us for another reason, we'd love to hear from you!

To ensure your message reaches the right person and you get the speediest response from us, please contact the relevant department below:

📧General enquiries / feedback: [email protected]

📖Help & Information: [email protected]

💷Fundraising: [email protected]

🥳Events: [email protected] 

💜Membership: [email protected]

You can also leave us a voicemail on 📞 020 7793 3651 📞 or even send us a letter ✉️ Dystonia UK, 3rd Floor, 89 Albert Embankment, London, SE1 7TP ✉️

Please note the Dystonia UK team are not medically qualified so it is always best to direct these types of questions to your GP or primary medical team.

Current response time: All our enquiries are triaged by a member of the team and directed to the most relevant member of staff. We respond to people as quickly as possible and response time may vary. We aim to respond to all enquiries within 2 weeks of receipt. If you have not had a response after 2 weeks, and would still like to speak to us, please accept our apologies and do contact us again.

If you require emergency help do not delay reaching out. Call 999 or speak to someone 24/7 at Samaritans by calling 116 123.