01/11/2021 | Dystonia UK has launched its latest campaign today! The campaign is simple - we're asking our community to donate #JustOnePound to support our work and help us raise £100,000, one pound for every person in the UK thought to be affected by dystonia. Read more
26/10/2021 | The Neurological Alliance's My Neuro Survey has now launched. Read on to find out why this survey is so key in improving neurological services. Read more
15/10/2021 | We are so delighted to bring you 'Dystonia Animated' Episode 2 - 'Charlie at the children's hospital'! Read more
17/12/2021 | Our office is now closed until 4th January 2022. Read more
06/10/2021 | On Sunday 3rd October, seven amazing runners took part in the Virgin Money Giving London Marathon and its sister event, the Virtual London Marathon. Read more
23/09/2021 | The Neurological Alliance has recently published its response to the Health and Social Care Committee inquiry – Clearing the backlog caused by the pandemic. Read more
21/09/2021 | For 'Dystonia Awareness Month' the Solent Dolphins crossed the iconic Solent waters from Gosport to the Isle of Wight, raising awareness and money! Read more
13/09/2021 | A massive well done to our amazing runners who took on the Great North Run 2021! Read more
27/08/2021 | Huge congratulations to our amazing Patron Tully Kearney! Tully has won gold and silver at the Tokyo Paralympic Games. Read more
28/05/2021 | Read more about the work Dystonia UK has recently completed with National Voices including the launch of a report on inclusive digital access to care. Read more
05/05/2021 | Our Director of Operations and Development attended the King's Fund 'Digital Health and Care conference: Learning from COVID-19'. Read more
06/04/2021 | People with dystonia have shared concerns about receiving support, healthcare and mental health services during the pandemic. A new app is gathering data to shape the future of neurological care. Read more
31/03/2021 | We are so excited to present to you, the world premiere of our first ever animation!! Read more
02/02/2021 | Join us on 4th February at 18:00 for a Q&A live on Zoom. Read more
21/01/2021 | During the course of 2020 we were delighted to be asked by National Voices to contribute to their latest report ‘Patient. Adjective. Noun.’ The report was instigated by NHS England and Improvement who asked about people’s experience of waiting for care to be explored. Read more
08/01/2021 | NICE (National Institute for Health and Care Excellence) has published its 'Suspected neurological conditions: recognition and referral' Quality Standard, a set of statements describing what high quality care looks like. Read more
31/12/2020 | Our medical advisors share their thoughts on the COVID-19 vaccinations. Read more
18/12/2020 | Our office is now closed until 4th January 2021. Read more
10/07/2020 | Throughout 2019/2020, we've been updating our brand and website with a fresher, more modern, more memorable look and feel. Read more
09/07/2020 | As well as updating the website, we have also updated our merchandise range! Read more
29/05/2020 | Dystonia UK has been working with the UCL Global Disability Innovation Hub to support their research project ‘Prime-VR2’. Read more
28/05/2020 | Dystonia UK have provided some useful information on what you might be able to expect as appointments resume. Read more
08/05/2020 | Dystonia UK is thrilled to present the second webinar in our 'Reach Out, Reach All' series. Read more
07/04/2020 | Dystonia UK present a webinar with Dr. Marie-Helene Marion on topics surrounding dystonia and botulinum toxin treatment during the coronavirus outbreak. The webinar was hosted by Dystonia UK on Thursday 2nd April 2020. Read more
26/03/2020 | Our office is now closed until further notice though our team will continue to maintain business as usual working from home. Read more
11/02/2021 | We’re here for you. Here’s the latest guidance on coronavirus and dystonia, and where to get support. Read more