For 'Dystonia Awareness Month' the Solent Dolphins crossed the iconic Solent waters from Gosport to the Isle of Wight, raising awareness and money! Read more
13/09/2021 | A massive well done to our amazing runners who took on the Great North Run 2021! Read more
27/08/2021 | Huge congratulations to our amazing Patron Tully Kearney! Tully has won gold and silver at the Tokyo Paralympic Games. Read more
28/05/2021 | Read more about the work Dystonia UK has recently completed with National Voices including the launch of a report on inclusive digital access to care. Read more
05/05/2021 | Our Director of Operations and Development attended the King's Fund 'Digital Health and Care conference: Learning from COVID-19'. Read more
06/04/2021 | People with dystonia have shared concerns about receiving support, healthcare and mental health services during the pandemic. A new app is gathering data to shape the future of neurological care. Read more
31/03/2021 | We are so excited to present to you, the world premiere of our first ever animation!! Read more
02/02/2021 | Join us on 4th February at 18:00 for a Q&A live on Zoom. Read more
21/01/2021 | During the course of 2020 we were delighted to be asked by National Voices to contribute to their latest report ‘Patient. Adjective. Noun.’ The report was instigated by NHS England and Improvement who asked about people’s experience of waiting for care to be explored. Read more
08/01/2021 | NICE (National Institute for Health and Care Excellence) has published its 'Suspected neurological conditions: recognition and referral' Quality Standard, a set of statements describing what high quality care looks like. Read more
31/12/2020 | Our medical advisors share their thoughts on the COVID-19 vaccinations. Read more
18/12/2020 | Our office is now closed until 4th January 2021. Read more
10/07/2020 | Throughout 2019/2020, we've been updating our brand and website with a fresher, more modern, more memorable look and feel. Read more
09/07/2020 | As well as updating the website, we have also updated our merchandise range! Read more
29/05/2020 | Dystonia UK has been working with the UCL Global Disability Innovation Hub to support their research project ‘Prime-VR2’. Read more
28/05/2020 | Dystonia UK have provided some useful information on what you might be able to expect as appointments resume. Read more
08/05/2020 | Dystonia UK is thrilled to present the second webinar in our 'Reach Out, Reach All' series. Read more
07/04/2020 | Dystonia UK present a webinar with Dr. Marie-Helene Marion on topics surrounding dystonia and botulinum toxin treatment during the coronavirus outbreak. The webinar was hosted by Dystonia UK on Thursday 2nd April 2020. Read more
26/03/2020 | Our office is now closed until further notice though our team will continue to maintain business as usual working from home. Read more
11/02/2021 | We’re here for you. Here’s the latest guidance on coronavirus and dystonia, and where to get support. Read more
20/01/2020 | Thank you to everyone who supported, pledged and shared our Reach Out, Reach All project. Thanks to you all we hit our £5000 initial target and are well on our way to hitting our £12000 stretch target including offline donations. Read more
25/11/2019 | Reach Out, Reach All is a new Dystonia UK project aiming to produce a series of short films about the milestone moments in our lives that for someone with dystonia present unique challenges. You can help us achieve our goal - support our crowdfunder today! Read more
11/04/2019 | A team of researchers at the Oxford Eye Hospital, based at John Radcliffe Hospital, have created a device designed to help individuals with blepharospasm. Read more
01/03/2019 | Dystonia UK and Fight for Sight are funding researchers from Cardiff University to identify the symptoms associated with blepharospasm. Read more