Dystonia Essay Competition winners

We are delighted to announce the winners of our Dystonia Essay Competition for medical students.Read more

Awareness in Wales

John Meredith met with Dawn Bowden AM last week on behalf of dystonia patients and members of The Dystonia Society.Read more


Even when shopping online you can raise funds for the Dystonia Society!Read more

Let us share your news

Your voice is really important, so we would love to hear from you with any ideas, news or stories you might have for inclusion in Dystonia Matters, on our website, e-bulletins and social media platforms.Read more

Children's conference

There are still places available for our FREE Children's Conference being held on 22nd September 2018 in London. Book early to avoid disappointment!Read more

Support group meetings in August

Join one of our support groups at a meeting this August.Read more

Give as you Live

Raise funds for The Dystonia Society with your weekly grocery shop.Read more

Introducing Dayna Ferdinandi

Introducing your new Head of Fundraising and Communications - Dayna FerdinandiRead more


Every time you buy something from AmazonSmile, they will make a donation!Read more

Dystonia Europe Survey

Your personal dystonia experience and input can benefit the dystonia community today and in the future.Read more

Introducing Flavie Belanco

Introducing your new Fundraising Assistant - Flavie BelancoRead more

Dystonia Europe 25th Anniversary Conference videos

If you were not able to make it to Dystonia Europe's 25th Anniversary Conference & D-DAYs 2018 in Brussels, don't worry you can watch videos of the event online.Read more

Vitality 10k 2018

Report from Vitality London 10000 eventRead more

Conference for Parents and Carers

Speakers announced for our conference for parents and carers of children and young people with dystonia to be held on Saturday 22nd September 2018 at Resource for London, 356 Holloway Road, London, N7 6PA.Read more

Introducing Tully Kearney

Welcome to our new patron.Read more

Dystonia Matters Summer 2018 is out!

In Issue 96: Our new Patron Tully Kearney, European Conference news, Awareness Week and more.Read more


An interactive project from Dystonia Europe.Read more

Tea Dance in Berkshire

On Saturday 12th May the Berkshire Dystonia Society Support Group held a Tea Dance during Awareness Week.Read more

Dystonia Europe 25th Anniversary Conference abstract book

The abstract book from the successful and important Dystonia Europe 25th Anniversary Conference is now available online.Read more

The Dystonia Society need your photos!

Did you dress in green or do an awareness raising / fundraising activity for Dystonia Awareness Week?Read more

Welsh Movement Disorders Research Network

Dr Kathryn Peall, Dystonia Wales and Cardiff University have announced a piece of research for individuals living with certain forms of dystonia in Wales.Read more

Fundraisier Recruitment

We are currently looking to fill two fundraising positions; Head of Fundraising & Communication and Fundraising Assistant.Read more

The law protecting your data is changing

Tell us how you want to hear from us!Read more

Join our Thunderclap

During Dystonia Awareness Week 2018 we are running a Thunderclap campaign and we need your help to get the message out there and raise awareness of dystonia.Read more