AM urges Vale residents living with dystonia to seek help

Dystonia awareness in Barry & District NewsRead more

Concert in Wales

On Friday 27th April there will be a concert at Black Park Chapel raising funds for dystonia.Read more

Change to Helpline Days

Please note the days the Helpline are open have changed.Read more

Conference for Parents and Carers

On Saturday 22nd September 2018 we will be holding a conference for parents and carers of children and young people with dystonia.Read more

Dystonia Awareness Week 2018

Dystonia Awareness Week will be 5th - 13th May 2018!Read more

Liam's dystonia journey

Liam Carbery has collaborated with QEHB Charity to produce a booklet that aims to give insight into dystonia from the perspective of a patient.Read more

The Dystonia Society need your photos!

We work to be the voice of everyone in the UK affected by dystonia. To enable us to do that we need your help - would you like to be one of the faces of The Dystonia Society?Read more

Introducing Andrea West

Introducing your new Chief Executive - Andrea WestRead more

Botulinum toxin treatment

We asked Dr Marie-Helene Marion for her views on what can be done for people with dystonia when botulinum toxin treatment is not working well.Read more

Benefits which may help you

Joanne Day, Research and Information Officer, has compiled a useful list of benefits and grants you may not be aware of.Read more

Introducing Gary Roberts

Introducing your new Head of Fundraising & Communications – Gary Roberts.Read more

Research news

Read an update from Joanne Day, Research and Information Officer, about a research project The Dystonia Society is funding at Manchester Metropolitan University and the dedicated dystonia brain bank that has started recruitment at Queen Square Brain Bank in London.Read more

Website sponsor sought

Our website has had 1.4 million visits in the last year! Do you know any businesses that would benefit from supporting us?Read more

Unity Lottery

The Unity Lottery is a great way of supporting The Dystonia Society and every entry gives you a chance to be a winner!Read more

Stuart Cassells shares his dystonia journey

Stuart Cassells, a founding member of The Red Hot Chilli Pipers, was forced to stop piping when he developed dystonia. Thanks to a feature on BBC Radio Scotland, he has been able to raise awareness of the condition.Read more

A Royal Audience for Dystonia

Our Royal Patron, HRH Princess Alexandra, held a reception in November 2016 for all the charities she works with. Among hundreds of guests the Dystonia Society was represented by our chair, Joanna Atkin, CEO Guy Parckar, and longstanding group coordinator and fundraiser Gill Jepson.Read more

Postcode lottery for DBS in Scotland

The Dystonia Society responds to a BBC Scotland report into the ‘postcode lottery’ for Deep Brain Stimulation (DBS) treatment in Scotland.Read more

New Research

Earlier this year we announced that the Dystonia Society’s seed funding for a new research project has been awarded to Professor Ian Loram, Professor of Neuromuscular control of Human Movement at Manchester Metropolitan University, Faculty of Science and Engineering.Read more

Disability Awareness Day 2016

Disability Awareness Day celebrated its 25th anniversary in 2016. Sharon Forsdyke tells us of her experience of the day.Read more

First National Blepharospasm Day

Word of Mouth! There’s nothing quite like it. So what better way to swap experiences about blepharospasm than getting together a UK-wide group of people affected.Read more