MyDystonia

An interactive project from Dystonia Europe.Read more

Tea Dance in Berkshire

On Saturday 12th May the Berkshire Dystonia Society Support Group held a Tea Dance during Awareness Week.Read more

Dystonia Europe 25th Anniversary Conference abstract book

The abstract book from the successful and important Dystonia Europe 25th Anniversary Conference is now available online.Read more

The Dystonia Society need your photos!

Did you dress in green or do an awareness raising / fundraising activity for Dystonia Awareness Week?Read more

Welsh Movement Disorders Research Network

Dr Kathryn Peall, Dystonia Wales and Cardiff University have announced a piece of research for individuals living with certain forms of dystonia in Wales.Read more

Fundraisier Recruitment

We are currently looking to fill two fundraising positions; Head of Fundraising & Communication and Fundraising Assistant.Read more

The law protecting your data is changing

Tell us how you want to hear from us!Read more

Join our Thunderclap

During Dystonia Awareness Week 2018 we are running a Thunderclap campaign and we need your help to get the message out there and raise awareness of dystonia.Read more

Spanning the generations

Here Andrew Russell, who has myoclonus dystonia, tells his story.Read more

Neurology patients recalled in Northern Ireland

More than 2,500 neurology patients of Dr Michael Watt have been recalled for a case review by the Belfast Health and Social Care Trust.Read more

Award for research into blepharospasm

An award for research into blepharospasm has been launched by Fight for Sight and The Dystonia Society. Open for applications for 12 weeks from May 1st for research projects up to the value of £15,000.Read more

Dystonia Awareness Week 2018 Toolkit

Go green and be seen. Download our Awareness Week poster and other materials.Read more

AM urges Vale residents living with dystonia to seek help

Dystonia awareness in Barry & District NewsRead more

Concert in Wales

On Friday 27th April there will be a concert at Black Park Chapel raising funds for dystonia.Read more

Change to Helpline Days

Please note the days the Helpline are open have changed.Read more

Dystonia Awareness Week 2018

Dystonia Awareness Week will be 5th - 13th May 2018!Read more

Conference for Parents and Carers

On Saturday 22nd September 2018 we will be holding a conference for parents and carers of children and young people with dystonia.Read more

Liam's dystonia journey

Liam Carbery has collaborated with QEHB Charity to produce a booklet that aims to give insight into dystonia from the perspective of a patient.Read more

The Dystonia Society need your photos!

We work to be the voice of everyone in the UK affected by dystonia. To enable us to do that we need your help - would you like to be one of the faces of The Dystonia Society?Read more

Introducing Andrea West

Introducing your new Chief Executive - Andrea WestRead more

Botulinum toxin treatment

We asked Dr Marie-Helene Marion for her views on what can be done for people with dystonia when botulinum toxin treatment is not working well.Read more

Benefits which may help you

Joanne Day, Research and Information Officer, has compiled a useful list of benefits and grants you may not be aware of.Read more

Introducing Gary Roberts

Introducing your new Head of Fundraising & Communications – Gary Roberts.Read more

Research news

Read an update from Joanne Day, Research and Information Officer, about a research project The Dystonia Society is funding at Manchester Metropolitan University and the dedicated dystonia brain bank that has started recruitment at Queen Square Brain Bank in London.Read more