In this first episode of the Dystonia Matters podcast, you'll meet three members of the dystonia community, Louise, Katie and Andy.

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About the episode

Louise, Katie and Andy each have a different type of dystonia and were diagnosed at a different point in their lives.
Louise was born with dopa-responsive dystonia and uses a wheelchair full-time. Alongside her husband and dogs, Louise lives her life to the fullest, volunteering with disability charities when she's able.
After three to four years of symptoms and seeking treatment, Andy received a diagnosis of cervical dystonia. In the years since receiving his diagnosis, Andy has launched his own business.
Katie's doctors always mentioned dystonia as a possibility, because of her epilepsy, but she wasn't given her segmental dystonia diagnosis until she was 16 years-old. Katie is a college student who is extremely active in para-sport, even going so far as to do her physio on a horse! 


This project has been funded by the Coronavirus Community Support Fund, distributed by The National Lottery Community Fund.

Our podcasts are all about sharing your stories and hearing from the community. So if you would like to share your story then please pop us an email and a member of the team will contact you.

Donate £1 to support the dystonia community today

Donate £1 today to support the work of Dystonia UK. Your donations will make such a difference including giving our community the opportunity to share their stories on our Dystonia Matters podcast! We aim to raise £100,000, one pound for every person in the UK thought to be affected by dystonia.