Support us Your stories Living with stories Ross's story In this video Ross talks about his experience of coping with neck dystonia (also known as cervical dystonia or spasmodic torticollis). Neck dystonia is characterised by continuous or intermittent muscle contractions which cause abnormal, often painful, repetitive movements of the neck and head. The movements can lead to the head and neck twisting (torticollis) or being pulled forwards (antecollis), backwards (retrocollis), or sideways (laterocollis). I got diagnosed with dystonia. Which was actually fantastic because I knew what it was, I knew I wasn't going crazy, and it gave me hope of getting treatment and getting better.