NeuroLifeNow is a new digital platform created to routinely collect the stories of people with neurological conditions.

The platform asks people with neurological conditions to submit responses to a short series of questions about their experience of health and care services each month. This data will be published each month, to provide a real time view of if/how people with neurological conditions are accessing health and care services and will provide vital evidence to support our policy work.

This is of course incredibly important right now, as people living with dystonia continue to be hit hard by the impact of COVID-19.

Who can take part?

People living with a neurological condition, people who have had a brain or spine injury, or those who are close to someone who does.

How long will it take?

Once a month you will be asked to submit responses to a short series of questions.

Closing date:


NeuroLifeNow is in the pilot phase so we are currently collating feedback from the dystonia community to help with the development of the platform. If you have any feedback, positive or negative, please get in touch.