Skip over main navigation
  • Sign up
  • Log in
  • Basket: (0 items)
Dystonia UK
  • Twitter
  • Facebook
  • Instagram
  • YouTube
Membership Donate
Menu
  • About us
    • Who we are
    • The team
    • Annual reports and accounts
    • News
  • About dystonia
    • What is dystonia?
    • What causes dystonia?
    • Types of dystonia
  • Help and support
    • How we support you
    • Diagnosis and treatment
    • Just diagnosed
    • Your local support group
    • Our conferences
  • Membership
    • Why become a member
    • Join or renew your membership
  • Support us
    • Donate
    • Fundraise for us
    • Other ways to give
    • Partner with us
    • Volunteer for us
    • Campaigns
    • Your stories
    • Your voice heard
    • Shop
  • Admin
    • Log in
  • Basket: (0 items)
  • sbs-your-voice-heard
  1. Support us
  2. Your voice heard

Your voice heard

We are committed to ensuring your voice is at the heart of our work.

Become a member

Become a member

Join Team Dystonia UK as a member if, like us, you think dystonia matters. Read more

Published: 29th January, 2021

Updated: 3rd February, 2021

Author: Bernie McMahon

Related topics:
  • Your voice heard
Support a campaign

Support a campaign

Use your voice to support one of our campaigns including Dystonia Awareness Month and Reach Out, Reach All. Read more

Published: 29th January, 2021

Updated: 3rd February, 2021

Author: Bernie McMahon

Related topics:
  • Your voice heard
Take part in surveys

Take part in surveys

We use surveys and government consultations to collect important data that form key evidence in reports and other influencing work that we produce. Read more

Published: 29th January, 2021

Updated: 3rd February, 2021

Author: Bernie McMahon

Related topics:
  • Your voice heard
Back to top

Showing 10 of 3

Latest

  • Virtual 2021 Virgin Money London Marathon

    Virtual 2021 Virgin Money London Marathon

    Event Type: Marathon. Date: Sunday 3rd October 2021. Location: Virtual so wherever you are. Registration Fee: £15. Sponsorship Pledge £250.

  • Virtual 2021 Virgin Money London Marathon

    Virtual 2021 Virgin Money London Marathon

    Event Type: Marathon. Date: Sunday 3rd October 2021. Location: Virtual so wherever you are. Registration Fee: £15. Sponsorship Pledge £250.

  • Understanding Personal Independence Payment

    Understanding Personal Independence Payment

    Dystonia UK and The Brain Charity, discuss applying for PIP (Personal Independence Payment) and what you may be entitled to. This webinar took place on 23rd February 2021.

  • Dystonia Matters Webinars

    Dystonia Matters Webinars

    Reach Out, Reach All Webinars featuring experts in neurological movement disorders.

Most read

  • Make a donation

  • Callum's story

    Callum's story

    Callum's story, as told by his dad Neil. Callum is a young man with Down Syndrome who has neck dystonia (cervical dystonia).

  • Membership

  • Research update

  • Lockdown Unlocked

    Lockdown Unlocked

    Gemma-Louise Stevenson, Tully Kearney and Tegan Vincent-Cooke discuss a variety of topics as part of our Lockdown Unlocked series.

  • Date and times

  • What does my ticket include?

  • Ticket prices

  • Programme

  • What are the symptoms?

Tag cloud

Airdrie DS Group Cambridgeshire DS Group Edinburgh DS Group Hertfordshire DS Group Kent DS Group Lancashire & Fylde DS Group Liverpool DS Group London and Surrey DS Group Manchester DS Group North East DS Group North Shropshire Borders DS Group Northern Ireland DS Group Oxford DS Group Torbay & Exeter DS Group West Midlands DS Group West Sussex DS Group

Subscribe to receive regular emails from Dystonia UK

* indicates required
  • Sitemap
  • Terms & Conditions
  • Privacy Policy
  • Update your communication preferences


  • Twitter
  • Facebook
  • Instagram
  • YouTube

Registered office

89 Albert Embankment
London SE1 7TP
[email protected]
020 7793 3651

Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)


Help Dystonia UK

Donate Volunteer Fundraise