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  • sbs-your-voice-heard
  1. Support us
  2. Your voice heard

Your voice heard

We are committed to ensuring your voice is at the heart of our work.

We want your stories and voices to be heard. Take a look below to see all the ways you can get involved and help spread the word that dystonia matters.

Become a member

Become a member

Join Team Dystonia UK as a member if, like us, you think dystonia matters. Read more

Published: 29th January, 2021

Updated: 3rd February, 2021

Author: Bernie McMahon

Share your story

Share your story

We can achieve the most impact if we have real patient stories to tell. Read more

Published: 9th September, 2019

Updated: 16th August, 2021

Author:

Support a campaign

Support a campaign

Use your voice to support one of our campaigns including Dystonia Awareness Month and Reach Out, Reach All. Read more

Published: 29th January, 2021

Updated: 3rd February, 2021

Author: Bernie McMahon

Take part in surveys

Take part in surveys

We use surveys and government consultations to collect important data that form key evidence in reports and other influencing work that we produce. Read more

Published: 29th January, 2021

Updated: 3rd February, 2021

Author: Bernie McMahon

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Showing 10 of 4

Latest

  • #BackThe1in6 - My Neuro Survey update

    #BackThe1in6 - My Neuro Survey update

    08/06/2022 | We are calling on UK governments to back the 1 in 6 and establish a Neuro Taskforce

  • RideLondon 2022

    RideLondon 2022

    08/06/2022 | On Sunday 29th May, 11 fabulous cyclists from #TeamDystoniaUK took on the prestigious RideLondon.

  • Keswick to Barrow sponsored walk

    Keswick to Barrow sponsored walk

    13/05/2022 | On Saturday 7th May five amazing teams took on the super challenging K2B and C2B sponsored walk, completing an incredible 40 and 20 miles!

  • Dystonia Matters Live 2023

    Dystonia Matters Live 2023

    Dystonia UK's annual conference.

Most read

  • What is dystonia?

    What is dystonia?

    Dystonia is a neurological movement disorder that is estimated to affect at least 100,000 people in the UK.

  • What are the symptoms?

  • What causes dystonia?

    What causes dystonia?

    The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.

  • What are the common treatments?

  • What are the symptoms?

  • What are the causes?

  • Who does it affect?

  • What are the symptoms?

  • How will it affect my life?

  • What are the common treatments?

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[email protected]
020 7793 3651

Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)


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