Support us Your voice heard Share your story Where do I start? If you are thinking about sharing your story, the following prompts might be helpful to get you started: Personal details (name, age, occupation, interests) Dystonia details (type, age/year of diagnosis, treatment plan) Experiences What did it feel like when you were first diagnosed? What kinds of things help you live well with dystonia? Have there been any challenges or successes living with dystonia? Do you have any good or bad examples of services? How does it affect you and those around you? What advice would you have for someone else living with dystonia? Why does dystonia matter to you?