Where do I start?

If you are thinking about sharing your story, the following prompts might be helpful to get you started:

• Personal details (name, age, occupation, interests)

• Dystonia details (type, age/year of diagnosis, treatment plan)

• Experiences

• What did it feel like when you were first diagnosed?

• What kinds of things help you live well with dystonia?

• Have there been any challenges or successes living with dystonia?

• Do you have any good or bad examples of services?

• How does it affect you and those around you?

• What advice would you have for someone else living with dystonia?

• Why does dystonia matter to you?