Dystonia Matters Live 2024

Details of Dystonia Matters Live 2024 have not yet been released. Sign up to our e-news to be one of the first to hear any announcements.

Latest

Brighton Half Marathon 2025

Event Type: Half Marathon. Date: Sunday 2nd March 2025. Location: Brighton. Registration: Free! Fundraising Target: £500
Dystonia UK Awards 2024 nominations now open!

19/04/2024 | The 'Dystonia UK Awards' are back and bigger than ever! The awards shine a spotlight on our incredible community, giving you the opportunity to nominate and vote for your very own 'Dystonia Superstar', 'Masked Hero' and 'Young Champion'.
Episode 2: Hayley's story

Emma and Gareth join Dayna to share their and daughter Hayley's story.
Dystonia UK Awards 2024

Dystonia Matters Live 2023

From all of as at Team Dystonia UK, a huge thank you for joining us at Dystonia Matters Live 2023!
Dystonia Matters Digital: For Kids, Carers & Families

Our digital conference for children and families held over two days, the 19th and 20th of March 2021.
Dystonia Matters Digital

Our first ever digital conference, held over two days, the 25th and 26th of September 2020.

What is dystonia?

Dystonia is a neurological movement disorder that is estimated to affect at least 100,000 people in the UK. Learn about it here and request an information booklet.
What are the symptoms?
What causes dystonia?

The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.
What are the symptoms?
What are the symptoms?
What are the common treatments?
What are the common treatments?
What are the causes?
What are the causes?
Who does it affect?