Thank you for an amazing Dystonia Awareness Month 2022!

Catch up with the webinars released during Dystonia Awareness Month here.

Catch up with the podcast episodes released during Dystonia Awareness Month here.

Latest

My Neuro Survey 2024 is open!

22/07/24 | The 2024 My Neuro Survey - the largest patient experience survey of people living with neurological conditions is now live!
My Neuro Survey

For anyone with dystonia in England, Scotland, Wales, Northern Ireland or the Republic of Ireland. Takes 20 minutes.
Dystonia Matters Digital: For Kids, Carers & Families

Our digital conference for children and families held over two days, the 19th and 20th of March 2021.
Awareness Raising Guide

An Awareness Raising Guide to support everyone from or in support of our community on their journey of raising awareness that Dystonia Matters.

What is dystonia?

Dystonia is a neurological movement disorder that is estimated to affect at least 100,000 people in the UK. Learn about it here and request an information booklet.
What are the symptoms?
What causes dystonia?

The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.
What are the symptoms?
What are the symptoms?
What are the common treatments?
What are the common treatments?
What are the causes?
What are the causes?
Who does it affect?