Living with dystonia

How can you shape the future of neurological care?

06/04/2021 | People with dystonia have shared concerns about receiving support, healthcare and mental health services during the pandemic. A new app is gathering data to shape the future of neurological care.
Episode 3: Parents and carers

Parents and carers are an essential part of the dystonia community, so in this episode we're introducing you to three phenomenal parents and their journeys helping their kids navigate their conditions.
Episode 2: Working with dystonia

For the second episode of the Dystonia Matters podcast, we're sharing lifestyle advice from Dystonia UK Ambassador, Gemma Stevenson and Nick Morgan.
Episode 1: Faces of the dystonia community

In this first episode of the Dystonia Matters podcast, you'll meet three members of the dystonia community, Louise, Katie and Andy.

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Callum's story

Callum's story, as told by his dad Neil. Callum is a young man with Down Syndrome who has neck dystonia (cervical dystonia).
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What is dystonia?

Dystonia is a neurological movement disorder that is estimated to affect at least 100,000 people in the UK.
What are the symptoms?
What are the causes?
Research update
What are the common treatments?
What are the symptoms?
Who does it affect?

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