Are you called Dystonia UK or The Dystonia Society? Expand We are Dystonia UK! Originally established in 1983 as The Dystonia Society, by a small group of people living with dystonia, we rebranded in 2019 to reflect the growing needs of our community. Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127).
Are you a registered charity? Expand Yes. Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127).
How do you ensure my data is safe? Expand We will always store your personal details securely. We will only use them to provide the service(s) that you have requested and communicate with you in the way(s) you have agreed to. Your details may also be used for analysis purposes, to help us provide the best possible service. We will not pass on your details to anyone else and we will only share them if required to do so by law. You can read our full privacy policy here.