More and more of our supporters are choosing to leave a legacy to Dystonia UK when making or updating their wills. For many, it's a way of continuing a lifetime of support for a cause they care deeply about.

Help us achieve our mission to to give hope and support to everyone living with dystonia and to create UK and worldwide awareness by leaving a gift in your will today.  You will be helping people living with dystonia receive the support they need and fund vital research to stop dystonia for good.

Gifts in Wills, also known as legacies, are a significant source of support for Dystonia UK. Without these generous gifts much of our vital work, including our magazine Dystonia Matters, information leaflets and consultancy to medical professionals would not be possible.

"It's like coming out of a long tunnel. For so long we've waited for someone to take our case seriously and all this time John has been a shell of his former self. For the first time, we were taken seriously and have a proper programme of treatment. The doctor apologised to us for our former treatment by the NHS. At least we have hope and it's all thanks to Dystonia UK"


How to make a gift in your will

It's easy to include a legacy to Dystonia UK in your will - simply instruct your solicitor of our name, address and registered charity number:

Dystonia UK (The Dystonia Society)

3rd Floor

89 Albert Embankment



Registered Charity Number in England and Wales 1062595 and in Scotland No. SC042127

Alternatively, you can update your will by completing a Codicil form and sending it to your solicitor. You can find templates for these online or send us an email [email protected] if you would prefer a hard copy.